Does anyone on HU have painful urination. I have... - MPN Voice
Does anyone on HU have painful urination. I have painful joints and awful itch at night. My hair has also got very thin. Is it only me
No it's not only you myelo..it's all of us ladies ,,one thing this week ,another new problem next week.its all part of life's rich taperstry ,, don't panic deary plod on......
Hi myelo - not sure bout the painful urination thats usually due to water infection so if it continues I would go doc or nurse at surgery. Itching is common. I have MF and some of my joints are sore also and I can't walk over far without real discomfort. My hair seems to have gotten dry over the last few years on HU but at least its easy to pluck the grey ones out - probably why im semi bald. So your symptoms probably due to a combination of your MPN and the HU as I believe mine to be. Cheers
Your up early
Hi O Twinkly One - yes I was awake a tad early - had crumbs in me bed, serves me right for takin digestives up wi me midnight brew. Hope you're doin well mon amie x Cheers
Haven't heard from you JR in a while I was concerned you had been blown away in a storm in windy Blackpool ,we had a very enlightening day yesterday ,went to Colchester forum ,about 20 others came ,we had an open discussion about all the different affects of these illnesses on our lives ,prof Clare Harrison ,was there to answer our many questions,on pain ,fatigue,drugs,symptoms,it was very rewarding,as all of us at different stages of our lives.
Hi, I seem to get the painful urination on and off but seems to last a day then ok for a few then back, but can go a couple of weeks ok then cycle starts again. Also going through early menopause ( I'm 41) so had put it down to a mix of everything.
Have gone to Dr. with urine sample JediReject and there's no infection. Having a giggle at you pulling out the grey ones. Finished menopause so it's not that Denise. As you say Twinkly it's one problem after another. When my HU was upped before Christmas the painful urination started and hair started falling out so I'm putting it down to that. It's interesting that some of you have it as well. Thank you for taking the time to reply. It's a great asset to have this forum to voice worries etc. but there is also such a lot of positivity that you can't stay too down for long.
Im glad there is no infection so I guess you have to put it down to your HU dose which doesnt surprise me as its not a drug any of us would swallow except out of necessity. . just make sure you drink plenty to flush your system as I swear by it. Regarding plucking them grey uns out I dont want you thinking Im vain or owt but unlike me missus I dont hotfoot to the hairdressers every 5wks for a cut and colour. I must say tho my scalp is very dry and Ive developed a few patchy areas so I am a tad concious of it as I keep my head close shaved. Take care. Cheers
Just turned 75 and have had PRV for 8 years, with constantly shifting symptoms. No urination pain, but sometimes flow is poor. Fatigue, itch (any time day or night, depending on temp and humidity. Can't get wet), energy loss, body temp up and down, these are pretty constant but variable. Never know what's next or how strong it will be. Also get 'phantom' pains, particularly in my feet. lots of fun and games! Keep positive and keep moving so nothing else can catch you!!
I have ET and have painful joints, muscles, hot flashes, itch, dry skin, from time to time thin hair, etc........ urination is slow but not painful. For itch I use Aqueous cream to wash myself and after. For hair I use 'Pilfood' herbal supplement when I notice that my hair is falling out much and after one week using Pillfood it stops hair falling out and helps with thickening hair . I use it every 4-6 months. I by it on Amazon. With urination pain I suggest to drink lots of water. I drink 3 l a day. For painful joints and muscles I use enzymes Wobenzyme and Zyfamend, excellent stuff. It really works for me. Wishing you well.
What is your diagnosis? I have PV and have had itching when I lie down since the beginning. I have found that the combination of Atarax and Zantac bid is beneficial but
I sleep in a recliner because I still begin ti itch when I lay down.
