Interferon: I currently take hydroxycarbomide but... - MPN Voice

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Interferon

ciye profile image
ciye
12 Replies

I currently take hydroxycarbomide but would like to switch to interferon, can this be self administered.

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ciye profile image
ciye
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12 Replies
Nellin profile image
Nellin

Hi Ciye,

I was on hydroxycarbamide, for ET jack2, for two years. Changed to Pegasys just over a year ago and self inject 135mcg every fortnight. I had self injected Heparin before but the specialist nurses instructed me again.

I find it very easy to administer and have meds reminders on my mobile to make sure I don’t forget.

Good luck with the change if you go ahead.

Nellin

ksos profile image
ksos

Hi Ciye: I've been on Pegasys for ET for just over a month and self-administer my injection weekly. The pharmacy walked me through the steps and I watched a video on-line that covered everything. I've found it to be very easy.

Take care,

Kim

ciye profile image
ciye in reply toksos

👍

charl17 profile image
charl17

Sometimes Pegasys comes in preloaded syringes and I imagine you could inject it yourself with simple instructions. My Pegasys come in a 1 ml vial and I use insulin syringes to inject all or part of the vial's contents. My wife does the injections because my eyesight is not so good and my hands shake.

ciye profile image
ciye in reply tocharl17

👍

littled profile image
littled

Hi ciye,

I changed from Hydroxycabimide to pegyasus after progression to MF but my partner does my injection at home, I'm a wimp but in honesty I struggle due to lots of scaring on my tummy area. They do sting but only very slightly and over in seconds and once you find the correct dose I personally find it so much easier than remembering to taking the tablets daily.

I'm just starting to get relief and see improvement now after being on it about 8 month started with 90ml every 4 weeks now take 180ml weekly but have bloods every 4 weeks to monitor closely.

Hope all goes well should you change over

Debbie

ciye profile image
ciye in reply tolittled

👍

AndyT profile image
AndyT

Absolutely - I’ve been self-administering Pegasys since 2015 with no problems - it’s very simple to do with pre-filled syringes.

Jocko profile image
Jocko

I am on Peg interferon - I inject 90mgs (one syringe) every other week. It's pretty easy - nothing to stress about.

All the best

Jocko

ciye profile image
ciye in reply toJocko

Thanks for that I just need to get Dr to agree

ciye profile image
ciye in reply toJocko

👍

SRH55 profile image
SRH55

I’m sure you’ll be ok. I have been on Pegasys for about four years, injecting myself, with no problems. I think sometimes the thought of injecting yourself is worse than actually doing it. Try to relax & tell yourself you will be fine. Good luck.

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