Researchers at Queen’s University Belfast and the University of Aberdeen, invite you to take part in an online research study investigating the impact of the COVID-19 (coronavirus) pandemic on caregivers and patients with MPNs, cancer, pre-cancerous conditions and rare diseases. Coronavirus disease (COVID-19) is an infectious disease caused by a virus [severe respiratory syndrome coronavirus 2 (SARS-COV-2)], the virus responsible for COVID-19.
This survey is open to all patients and caregivers aged 18 years or older. To participate in this study, you will need to complete a short survey based on your own experiences. This survey should take around 20-30 minutes to complete.
The rationale of the proposed study is to provide insight into how the coronavirus pandemic is affecting caregivers and patients with certain medical conditions, namely cancer, precancerous conditions and rare diseases. By completing this survey you will help to identify the impact that the pandemic has had on patients and their carers. It is anticipated that the findings will be presented at charity events/meetings, scientific conferences; in a paper published in a peer-reviewed medical/scientific journal; and internal student reports.
The researchers are also interested in investigating how the coronavirus pandemic continues to affect caregivers and patients, and therefore ask that at the end of the survey that you agree to give your email address so that they can contact you on two more occasions at the end of September 2020 and in January 2021 with an initial and reminder e-mail. This will help them to identify if the impact of the coronavirus changes over time. These surveys will be much shorter.
This is a GLOBAL survey, so open to everyone wherever you live. The survey is quite long, if you want to have a break you can stop completing it and either leave it open on your screen, or reclick on the link at a later time (if cookies are enabled), to take you back to where you were in the survey.
To complete the survey click on this link
surveymonkey.co.uk/r/IMPACC...
On behalf of the study team, we would like to thank you for your participation.
