Nhs letter

[Chel1]

Good morning bit confused I'm et jak2 +and on hydroxycarbamide haven't heard from nhs or doctor does this mean I'm not high risk I'm 69 ??

[Wesleygrange2a]

I also hadn’t had a letter so called a haematology nurse at the hospital I attend this morning. I’ve never met her because my condition has been stable for many years- I have P.V. and take Hydroxycarbamide. Nurse told me I should be isolating for 12 weeks because of the meds I’m on. I was at work, informed them and they asked for proof so rang the nurse back and she will send a letter to me. I am dreading the isolation but it’s for the greater good. My daughter is a nurse in A&E in London and they are really up against it. Hope everyone stays safe.

[Chel1 in reply to Wesleygrange2a]

Thanks for that stay safe

[Blaablaablaa]

It depends on your WBC count. There have been a few posts about this lately, but if in doubt the best person to ask is your doctor or haemotologist. Stay well 😊

[Trueblue8]

It's all very confusing isn't it! This is my experience:

I phoned my CNS and she said my ET isn't cancer so to just use the general guidance!! Yesterday I emailed my Haematologist and he came straight back and said ET is a blood cancer and therefore by definition I am in the high risk group.

So little is known about Coronavirus so they are being extra cautious, which is very sensible I think.

I will be shielding for 12 weeks but as I live in the countryside I will be getting up early and going for a run!

Hope this helps

Ian

[lhammy66]

Yes I am on hydroxy too and am regarded as vulnerable but not extremely vulnerable. I can go for blood tests but maintain safe distance from patients, wash hands and avoid touching my face. Avoid any unnecessary trips out if the house. That sums up the advice I was given.

[bordeauxgirl]

I live in the Channel islands, had my blood test, but the nurses had no idea what will happen next as to whether I will get any further notification on further treatment or instructions from the doctors who are not allowed to visit us over here as usual. Island in total lockdown and everyone in isolation.