Essential thrombocytosis likely?

[Irishgal12]

So I got a copy of consultant letter which says diagnosis mpn likely et.

My haematologist told me after bmb it was et? Now am fixated on the word likely is this just the term they use?

[Mazcd Partner MPNVoice]

hi Irishgal

Essential thrombocythaemia (ET) is sometimes called essential thrombocytosis or primary thrombocytosis (PT).

Best wishes, Maz

[Irishgal12 in reply to Mazcd]

Thank u maz just confused as they said likely et? So thinking is it et or not?

[Mazcd Partner MPNVoice in reply to Irishgal12]

I think you need to ask them to clarify this for you. Maz

[Irishgal12 in reply to Mazcd]

Yes he told me it was and am jak2 and had bmb so not sure why he put likely maybe reading too much into it

[Aneliv9 in reply to Irishgal12]

Specialists that look the bone marrow, don't know exactly what has your hematologist diagnose from the liquid part of the biopsy, and sometimes it may look like polycythemia vera px, so only the two biopsies will tell the final diagnosis. That was exactly what my bone marrows results have written

[Irishgal12 in reply to Aneliv9]

He told me in clinic it was et

[Dazakella2010 in reply to Mazcd]

Think irishgal meant that they said it was ET after a BMB and now she has received the letter it states “likely”

[Applesnpears]

Diagnosing ET can be difficult as you need to exclude all other conditions that can cause elevated platelets. This makes it hard to be absolutely definitive but if you have had a BMB and you are JAK2 positive there may be little room for doubt.

To be sure, I think you should contact your haematologist.

[Irishgal12 in reply to Applesnpears]

Yes I will tomorrow just worried now

[Lab-Rat in reply to Irishgal12]

Perhaps what was meant is MPN best fitting ET, but please do check.

[smith124]

It may be that he said “likely” because according to WHO, you must fulfill specific criteria to definitively diagnose ET, PV or MF. As my hemo described it to me, according to WHO, being JAK2 positive is not enough to say you have an MPN. To be properly diagnosed with an MPN, you must check off all of the required boxes. If your bone marrow biopsy was inconclusive, then your hemo can’t technically diagnose you with ET, PV, or MF. Even though, as my hemo told me, being JAK2 positive almost certainly leads to an eventual MPN diagnosis. I would definitely clarify with your hemo what he meant by it, as we are not doctors.

Check out this link for WHO criteria for MPNs.

mpnconnect.com/pdf/who-diag...

[Irishgal12 in reply to smith124]

Thank u I have had bmb and he said it was et

[Wyebird]

There are predominantly 3 types of MPN’s. I think your doctor is suggesting it’s likely to be ET. I also think it that’s the monitoring of your blood test that might support this unless, as in my case, a faulty gene was found.