review of MF at hospital: I had an appointment on... - MPN Voice

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review of MF at hospital

billybrock profile image
8 Replies

I had an appointment on Monday with Donal Mclornan, one of Prof. Harrisons team at Guys. He said my blood counts were ok and that the Ruxolinitib is doing it's job. my abnormal readings were

WBC = 16

RDW = 15.7

Platelet, RBC, Haematocrit wre all within range.

Donal said no need to alter medication or dosage.

I am not experiencing any symptoms and need to get an abdominal scan to check if Spleen is shrinking.

So all in all, not too bad.

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billybrock profile image
billybrock
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8 Replies
idi75 profile image
idi75

He’s my consultant haematologist, you’re in good hands.

tracey13 profile image
tracey13

My husband is on ruxolitanib it's reduced his spleen down .

His bloods are almost in normal range his white cells are 12.9

I read that diet and stress can be a cause for higher white cells .

His white cells were 17 in December so he's been doing dry January and calorie counting he's lost 1 stone in weight and his white cells are now 12.9 which isn't too far out of range.

His liver function tests have have come down they almost in range now.

So I'm guessing lifestyle change works wonders with your blood results.

Tracey

beetle profile image
beetle

I was at Guy’s on a Monday too! I wonder if we were in the waiting room together? 😀

billybrock profile image
billybrock in reply tobeetle

I was in waiting room from 9 to 10am.

beetle profile image
beetle in reply tobillybrock

No. I didn’t get there til 11😀

KC63 profile image
KC63

Good news. He's my consultant too !

katiewalsh profile image
katiewalsh

Congratulations, that’s great news. You must be happy! Katie

billybrock profile image
billybrock in reply tokatiewalsh

It is great news. But one always has the fear of it suddenly progressing, in the back of your mind.x

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