Coventry Haematology: I am about to change my... - MPN Voice

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Coventry Haematology

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9 Replies

I am about to change my address from Leicestershire to A small village just outside Coventry, Post Code CV7.

I may have to change my consultant, does anyone have any experience of any Haematology Consultant & Venesection in the Coventry area?

Thanks..

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9 Replies
Norman45 profile image
Norman45

I’m in CV7, as is a neighbour and we both have myleofibrosis. We both have attended ward 19 at Heartlands Hospital which is a centre of excellence for MPNs, for many years.

In the last few months our MF Doctor has opened a clinic at Solihull Hospital which is much closer to CV7 than Heartlands. Far more convenient.

PM me if you want more details etc.

Lezza1971 profile image
Lezza1971

Hi I’m in Solihull and have PV. Like Norman45 until last year I was under the care of ward 19 at Heartlands hospital in Birmingham but was moved to the new Haematology and Oncology unit at Solihull hospital when it opened. I would really recommend it, far more convenient and the staff are wonderful.

Nickthedevil profile image
Nickthedevil

I can highly recommend both Heartlands and Solihull too

shiftzz profile image
shiftzz

Thanks everyone...

Currently, I go to Leicester Royal Infirmary for my consultation, if I need to have a venesection I have to book to go to Leicester Royal. Whats the situation in Solihull?

My better half is a nurse and she takes my blood and I hand it into my local surgery.. Saves a bit of time on the consultation day..

Does this health authority prescribe Pegasus?

I will have my next appointment on the 3rd Jan, hope to be in our new home about mid January..

AndyT profile image
AndyT

You don’t necessarily have to change - you can attend any hospital you want so could stay at LRI if you’re happy with your treatment there. I attend LRI and while it’s a big and busy clinic I’ve always been pleased with the standard of care and knowledge of MPNs of the team there.

Karol_Rua profile image
Karol_Rua

I live in rural Ireland. My haematologist is based in Dublin, where all our centres of excellence are... I travel 4 hours and back by train to attend appointments and have done so for 13 years. If you're happy with your haematology department and consultant, why change??

eire profile image
eire in reply to Karol_Rua

Hi Karol_Rua , I also live in rural ireland - Sligo - and travel to St. James in Dublin. I have advanced MF and usually go up every 3 months. I go to Sligo hosp every 3 months also. Both haems have told me if I have any concerns I don't need an appointment and so far this has worked out well for me. I catch the 5.45 train and am usually on the 1.00 train to come home. I would never change my haem but it really is a long trip up to dublin when I only live 15 mins from Sligo but as you say it's where our centre of excellence is. I've known both haems throughout my MF journey of 10 and a half years.

Pat

Karol_Rua profile image
Karol_Rua in reply to eire

Hi, great to hear from you. Likewise, I've shared most of my ET journey with one lovely competent haematologist and wouldn't dream of changing. Thats the downside, I guess, of living in mayo and sligo. Dublin is also where I attend other clinics and have been there weekly over last three weeks...😴😴

Best wishes, Karol

•• "Dying to Live; A Memoir" by Karol Donnelly, available now on Amazon and at selected retailers nationwide

shiftzz profile image
shiftzz

Thanks everyone...

As a matter of interest where do they do venesections?

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