What is rheumatoid arthritis, the condition tennis champion Caroline Wozniacki lives with?

[socrates_8]

Post by socrates_8 » Sat Oct 26, 2019 10:38 am

OCT. 25, 2019

by Fabien B. Vincent and Michelle Leech, The Conversation

Hey everyone...

I believe that this article might be relevant to some of us... It certainly was to me... Although I tested negative for Rheumatoid Arthritis (RA), some of you might also recall that I am presently using the Drug Methotrexate (MTX) to help manage my aberrantly high platelet counts, which were previously 900s-1M, (last count 832). In other words, the management of an aspect of my Inflammatory ecosystem... By taking an RA drug, Low-dose (10mg pw), Methotrexate...

Anyways, just thought some of you might find it of interest, as did I...

mpn-mate.com/forum/viewtopi...

Best wishes

Steve

[Lifam]

I only know it's the worse form of arthritis

[socrates_8 in reply to Lifam]

Hey Lifam...

The more interesting aspect from my perspective Lifam, is that I have found another medication that has helped me to arrest the seemingly ceaseless climb of my very high Platelet regime... (Methotrexate - MTX) coupled with Folic Acid...

Still, early days yet and still watching each blood test here in Sydney with great interest...

You might also be interested in Joining MPN-MATE.COM

MATES FORUM:

mpn-mate.com/forum/viewforu...

It is Australia's First MPN Patient's FORUM website... We do Cafe Catchups & talk loads about how far behind Australia is in terms of being able to cater to the needs of MPN patients in Australia etc...

Why not come along if you are free and able to do so...

Best wishes

Steve

[Lifam in reply to socrates_8]

Wish I live in Sydney. I live in Adelaide. But I'll join the MPN forum for sure. Thank you so much for the article.

[socrates_8 in reply to Lifam]

No problem... If you are ever visiting just let us know, and we will arrange a CAFE Catchup...

Best wishes and good luck trying out the Curcumin, and I sincerely hope that you derive a benefit from it of course...

There are quite a few articles on MATES about Curcumin too...

Best wishes

Steve

[Anag in reply to socrates_8]

Hi Steve.

I live really far away, but have many first cousins in Sydney. I almost flew there 8 years ago. If I ever finally get there, I’ll let you know!

Have a great weekend. Anag

[socrates_8 in reply to Anag]

You too Anag...

Do let me know yes... It would be great to meet you also...

Steve

[Lifam in reply to socrates_8]

Thank you, will do that.

[socrates_8 in reply to Lifam]

BTW - You will be the 2nd person from Adelaide in recent times to have come and joined MATES...

Maybe I can connect the two (2) of you too...

At least that way you might have your own Cafe Catchups in Adelaide... upon occasion...

Steve

[Lifam in reply to socrates_8]

Such great idea, that will be great. Thanks.

[mhos61]

Hi Steve.

Thanks for the article, my husband has RA (30+years).

My husband’s former GP specifically referred to this as Rheumatoid ‘Disease.’ He refused to call it ’Arthritis’ as some medical professionals also do. This is because it can affect many systems (systemic) not just the joints. Unlike Osteoarthritis, it is an autoimmune condition.

You can still have RA and be seronegative. Seropositive RA, which my husband has, tends to follow a more aggressive course.

You can imagine my surprise recently when my husband’s Rheumatologist discussed a new Jak inhibitor treatment (baricitinib). It targets Jak 1 and 2.

[socrates_8 in reply to mhos61]

Hey Mary...

Yes, Inflammation, definitely looms large in all of this, in my view...

Best wishes to your hubby, and please keep us informed as to how he goes with a new JAK inhibitor therapy, (for RA - how interesting indeed...)

Best wishes

Steve

[mhos61 in reply to socrates_8]

It didn’t go well Steve...Lowered immune system and hospitalised for serious infection.

That’s the problem with these diseases, the treatment can be as bad, in some cases.

When he is over this, it will be back to the methotrexate.

[socrates_8 in reply to mhos61]

I see Mary... I am very sorry to learn of your troubles too...

Best wishes to your hubby for a speedy improvement...

Steve

ox

[Anag]

Hi Steve,

my daughter got this when she was 2, right after her meningitis vaccine. (1 in 8 ticks in Austria carry meningitis). Yes. Another vaccine damaged child. Rheumatoid arthritis is not normal arthritis, which is caused by wear and tear. It is the immune system attacking the inside of the cartilage. Depending on the type you have, it may be oligoarthritis which targets up to four major joints of poly arthritis, which targets more joins, big and small. That is really debilitating. My little girl had swollen ankles and had it also in the eyes as uveitis, which was caused by a special form of oligoarthritis that included ANA antibodies, that targeted the back of her eyes. Could only be see by a slip lamp check and no symptoms. Terrifying. By the time one of the four doctors saw it, we were able to avoid blindness. Thank God! It was almost too late.

I always refused methotrexate, because I didn’t was the risk of her having handicapped children later on. I got her into complete remission by cutting out all omega 6 (as much as possible also no pork or pork fat, which are deadly for weak immune systems!!) and giving her best forms of omega 3 with protein together. That is: tons of salmon sushi, pistachios, flax oil in her milk and yoghurt and on her food. Best Greek olive oil in everything. The rheumatism was gone in a month, back 3.5 hrs later, when I let go of the diet and remission again with diet. Now she’s 15 and has no rheumatism.

This story above taught me to seek alternatives to mainstream medicine. For chronic illnesses, alternative and other more natural practices are indispensable!! Cheers, Anag

[socrates_8 in reply to Anag]

Wow!

That is really quite some story...

It really is quite an incredible thing to be able to communicate with each other...

So invaluable, and in so many ways...

Thank you Anag for sharing....

Best wishes

Steve

ox