So I have now completed my first 4 weeks on Peg Interferon and am pleased to report that my platelets dropped lower than ever before 😊
My results this week were a very respectable 460 (down from 820) so we carry on with 45 MCG a week for the next 4 weeks.
Not an easy 4 weeks but hopefully the end results make it worthwhile
Hello , I hope it all continues to improve for you, Bye Gill
Great news Graham and hope it all keeps improving. Best wishes, Maz
Hi Graham7694,brilliant result. Hope the trend continues. Atb, tina.🤗
Hi Graham, very pleased for you, re drop in platelets. My wife has Anagrelide and hydroxy and these keep her platelets easily within normal range. Was there a problem with your previous medication that prompted the move to Peg Interferon? I am interested in Joyce has regular Gl bleeding which I think is caused by erosive gastritis within the stomach due to Anagrelide and or the Hydroxy. imagine you go to Birmingham hospital, which is within reach of us, as we live about 28 miles from Shrewsbury just in Wales.
I have had a bit of a rollercoaster with medication. I was originally diagnosed with Myelofibrosis and started on
20mg BD. This made me feel very good but didn't do a lot for platelet reduction so started on 500mg Hydroxy as well. This started to bring platelets down but the dose was increased to 1000mg a day and at this point I became unwell with stomach issues. My haemo was off sick and the Locum consultant decided to relo ok at my case and said I had Essential Thrombocythemia and to stop all medicines except Aspirin. This actually made me a lot worse sobthenlong and short of it was the request for a second opinion. It was a long wait but I have to recommend Birmingham QE to anyone. My specialist is superb and extremely knowledgeable and seems to enjoy the fact that I research. The peg Interferon is the way of the future in my opinion however side effects can be harsh and it is not for everyone. But if you don't try it then you don't know. Everything else treats symptoms and yet I know of people who have been on Peg and now have no fibrosis and just receive a maintenance injection every now and then.
Hope this helps and of course all this is my own opinion and you should consult your doctor for guidance.regards
Graham
Thank you Graham, here's hoping it continues to work for you. PS what is BD?
BD is twice daily
Nooo what does BD stand for?
Great news, Graham!
That's really good to hear. I have been on Pegasys for nearly four months now and my consultant is really pleased with my blood counts. The side effects are just horrible, but I would rather just live with them because of the benefits to my blood. Hope it continues to go well for you.
The side effects are not great for half the week but get much better by the Sunday for me
Pegasys .. very slow results
Pegasys interferon shortage
Leaving Pegasys behind
Good Results after Pegasys treatment
ET JAK2 on Pegasys and Clopidogrel
