Blood sisters

[Sand-Dancer]

I count myself very lucky to have three such lovely ladies to share my MPN journey with.

We met one year ago today 😍

[Dazakella2010]

Beautiful 💗💗💗💗

[Mazcd Partner MPNVoice]

Lovely ladies x x x

[mhos61]

Looks like you’ve known each other a lifetime. X

[bruddery]

You all look so good ... best wishes Janice

[Sand-Dancer in reply to bruddery]

Thank you Janice. I’m looking forward to seeing you again in October. We are looking after your water bottle 😊

[bruddery]

Looking forward to it.... I imagine you’re back in the sunshine☀️☀️What bliss!! 😎

[Wyebird]

Fab

[Jschwab]

Beautiful....how did you all meet?

[Sand-Dancer in reply to Jschwab]

Hi. Originally on MPN Voice there was a way to find where people lived. I found that a lady called Pam lived not far from me so contacted her and we met up for coffee. And then we grew 😊. I can’t find that on the App now mind you.

[Jschwab in reply to Sand-Dancer]

I hope to find some blood sisters out there someday too! Thanks for sharing!! x

Jamie

[Sand-Dancer in reply to Jschwab]

Where do you live Jamie?

[Jschwab in reply to Sand-Dancer]

New Berlin WI.... a suburb of Milwaukee

[Sand-Dancer in reply to Jschwab]

Why dont you put a new post on and ask if anyone is from New Berlin Jamie? Good luck 😘

[Jschwab in reply to Sand-Dancer]

that's a good idea.... thanx!!

[JediReject]

Hi Leslie, , super pic of all you lovely lasses. . Long may your friendship and your meet ups for coffee or Gin ? continue. .

Chris x

[Sand-Dancer in reply to JediReject]

Gin? I wish - what do you think for next month ladies???????

[JediReject in reply to Sand-Dancer]

Well these flavoured gins are all the rage , , I've even considered brewing some as there's no shortage of nettles. . And I have rhubarb. . . Would maybe save me a few shekels as my lovely wife is partial to it all. . .

Everything in moderation of course x

[Sand-Dancer in reply to JediReject]

Of course Chris, of course 🤣

[Phelpsy in reply to Sand-Dancer]

Yes , Yes yes 💗 I love my Blood Sisters ❤️

love the stuff keeps my blood thin lol 😂

[Fionnuaghla]

Hi

Following that lovely photo, how you met and your suggestion to Jamie, I would really like to also have blood sisters and perhaps meet occasionally. I have PV and I live in Leyland in Lancashire. I await a response.

[danni4 in reply to Fionnuaghla]

I feel the same way, I live just outside Bath.

[DN515]

I would also love to find sisters!! I am in Portland, Oregon. 42 years old, diagnosed 4 years ago with PV.

[JackLina]

How did you arrange this? Please tell me because I am completely alone with this MPN. I'm not one to mope but it would make a great difference if I had contact with like people. If only to share ideas about what we could do to feel better and have someone to do it with.

I tried asking my haema if he could let others here has know I wanted to set up a self-help group but nothing has happened on that score.

Good to learn that it has worked for you.

Keep smiling. xxx Here's a hug for you all.

[piggie50]

Lovely ladies. 😍

[pontygirl]

Lovely Picture Lesley, so lucky to find folk locally, nice to meet up for Coffee etc..

Enjoy the Sun, still raining here ☔️

Mary xxx

[ansaseeker]

Hi sand dancer.i attempted to meet up with people last year, and it didnt really go anywhere.I have since moved back to be near my children,and now live in Toronto Canada.I come home to visit, and hope to meet up with all you lovely ladies.I believe we are in the same area.I come back to Darlington.I hope you keep in touch,its a great pic of you all.till we meet take care of each other.Oh and I will look to meeting up with fellow p.v.r's in Canada.

Warmest Wishes

Xx

[Sand-Dancer in reply to ansaseeker]

Let us know when you are back and we will definitely have to all meet up 😊

[Doggy1903]

lovely companionship. !! All take care and enjoy your get togethers!!

[Sand-Dancer in reply to Doggy1903]

Thank you x

[Phelpsy]

My Gawgus Girls ❤️

Love our get together’s

Long may they last x x x