Being a doctor with et

[DamnYouEt]

Is there any doctor with ET? Kindly let me know how things are going for you.

[Scottishterrier]

HI Jennifer

you also get tested for jak1 or 2 negative or positive i have Essential thrombocytheamia jak2 positive anyone who has an mpn gets tested for jak1 or 2 negative or positive it is routine so please do not worry

best wishes

Scottish Terrier

[Jennifermcd in reply to Scottishterrier]

Thank you. (Also, I love Scottish Terriers!)

[Scottishterrier in reply to Jennifermcd]

your welcome i use the name because i was campaigning for more mpn clinical nurse specialists in scotland and better understanding by GPs about MPN with the help of my Msp it has taken from the end off November till this month for my hospital to get one i constantly pushed Shona Robison and new health minister and head of GPs i would not let it lie that is why i am Scottish Terrier and never gave up also had a neighbour who had a mother and daughter brilliant temperament

best wishes

Scottish Terrier

[stillkicking]

Hi Adeesh,

I have been aware of at least 2 Doctors with MPNs posting on this site over the last couple of years, so I hope someone does reply to you. I have ET myself, but am not a doctor.

Best Wishes,

Peter

[DamnYouEt in reply to stillkicking]

Hi Peter,

Since how long are you dealing with ET?

[stillkicking in reply to DamnYouEt]

Hi Adeesh,

I was diagnosed by bone marrow biopsy early 2017, but found out later that my blood results had been abnormal since about 2015. Initially I was treated with daily low dose aspirin, but have been on Hydroxyurea from early 2018.

[DamnYouEt in reply to stillkicking]

How is your overall wellbeing after you started hydroxy?

[westlieght]

Hi Adeesh

Am Post ET/MF .

Long journey 13 years firsts diagnosed ET put on aspirin and chemo drug to get my platelets lower around 350 then around 7 years ago my blood cancer developed to mulfibrosis blood cancer scaring of the bone marrow am now dependent transfusion every 4month !still enjoying life play golf work part time hairdresser !best wisher