Three years ago I started with a closed FB-group for patients with a MPN. We allow every patient, we do not want to be a CALR exclusive group. We have more than 850 members so far, some are having PV, others ET or MF. 70% of our group members are CALR+, but we see also JAK2, MPL and triple negative members. Feel free to join our group, which is very international : facebook.com/groups/1889866...
ET/MF CALR support group Facebook: Three years ago... - MPN Voice
ET/MF CALR support group Facebook
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WimL
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MazcdPartnerMPNVoice
Please note that this Facebook group being referred to is not connected to MPN Voice in any way and is not monitored by MPN Voice. Maz
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