Low mood

[Garden987]

I wonder how many of our MPN family experience low mood. I have ET and CFS and have had a UTI for 2 years which has finally been dealt with. The infection caused me to feel very unwell and dealing with ET and CFS has been a struggle. I mentioned to my Clinical Psychologist that I wish I could die because of the struggle and the fact that I am totally isolated. RED FLAG. Now the nurse from the Adult Mental Health team has referred me to a psychiatrist - history going back to 1970!. In my opinion we all have low moods - don't we?. It seems to me that things are being taken out of all proportion. I have no intention of killing myself as I have told the nurse but she keeps referring to low mood. I would appreciate any comments please. I live alone and can barely walk although I do my best. Running up and down the stairs to the loo is good eXcercise anyway. Thanks. Mary

seems to me that

[lizk1993]

Hi Mary,

Remember reading earlier posts of yours when you were feeling low and struggling with your isolation and lack of available help in your area. So I guess you've been feeling low for some time now, and with good reason. I wonder if perhaps this current situation, where you have access to a mental health nurse might just an opportunity for you to gain some much needed help. Perhaps now there might just be a glimmer of hope that things will be put in place to help you and make your circumstances better. I sincerely hope so.

Best wishes

Liz

[Garden987 in reply to lizk1993]

Hi Liz. Thanks for your reply. UNfortunately my nurse isn't listening to me. I am not depressed but she seems intent on me having antidepressants. Have been very unwell for ages and can't do any of the things I love but so desperately want to. As a natural "do it all" person my Fatigue is very bad.The sad thing is no one can magic people out of the air or produce Neighbours who interact. My road is full of. Om uterus and I don't even know what they look like! I'm 79 but not the bingo,scrabble type which is all that seems to be on offer here. I was really asking if any one else ever felt down. Glad to know that there aren't too many of you. All good wishes. Mary

[lizk1993 in reply to Garden987]

HI Mary, I do understand what you were asking, but was hoping that the mental health nurse might have been in a position to offer you some much needed help. In answer to your question about feeling low, yes I do feel low at times, never more so than now as my husband has a very advanced cancer and is very unwell. Even with friends and family offering help and a listening ear, I have never felt so alone in my life. But there are brief spells when he is well enough for us to do something and that makes things more bearable. Perhaps you could show your mental health nurse what you've written here, and perhaps some of your earlier messages. Worth a shot perhaps, sometimes when people see things in writing they take it on board a bit more.

Really hope things improve for you.

Regards

Liz

[Tico in reply to lizk1993]

Hi liz,reading your post is very humbling and reminds us all their is always someone else worse off than ourselves. It makes me appreciate my lot in life even when dealing with a occasional fatigue & bone pain. Making the most of even the brief times when your husband is well enough & also having to cope with your own illness yet still managing to offer a few kind words to someone else is amazing. I wish you & your husband all the best for the future.tina x🤗

[lizk1993 in reply to Tico]

Hi Tina, very kind of you to say that. Today has been a good day and we got out and about for a while. Fingers crossed for tomorrow. May not be so optimistic come 10 Dec - due to have my gallbladder removed because of a growth there, benign they reckon, but removing to make sure it doesn't get the chance to be anything else. Oh what fun!! Currently, trying to get all my Christmas things organised as I don't think I'll be up for it after the op.

Wishing you all the best for the coming festive season.

Liz

[Eire66]

Hi Mary, I totally agree with Liz. Being isolated is very difficult on it's own then add your other ailments I think anyone would feel down in the dumps. I live in the country and know very few people but I can drive and go for a walk. I bet you have unknown neighbours who are in similar positions who would like company it's just finding a way to meet people. Our local library is always running events but getting to places could b a problem for you?? I so hope things turn around somehow for you. All the best Pat.

[Tico]

Hi mary, now you have access to the adult mental health team,maybe you could use this opportunity to explain that your biggest problem is the isolation your feeling. I'm sure at this time of the year,their will be up & coming festivities & events,even in small communities like yours. Ask if they have access to transport you to & from there & you could with a bit of luck meet someone in the same position as yourself and swap email addresses to communicate & perhaps meet in town once in a while for a coffee? I think you mentioned you occasionly take a taxi into town? Atb,tina🤗

[Garden987]

Hi Tico. Thanks for replying. I use a taxi to go for appointments etc. Don't go anywhere else. But you can't magic people into your life if they do 't want to mix. There is very little happening in this town, sadly, but maybe something will happen. Just get so frustrated at not being able to do my garden, walk, decorate,paint, go on trips etc. There is no one here who looks out for anyone so I'll just have to grin and bear it. Glad you all seem to be doing OK. Best wishes. Mary

[Bluetop]

Hi Mary, Sorry to hear about your loneliness. I'm sure I would be feeling down if I couldn't get out and could only look at my garden, not work in it. Since retiring, I have much enjoyed meeting new people through the U3A (University of the Third Age) -there are lots of different interest groups at each branch. Locally we have anything from jigsaws and knit and natter through to gardening, local history and creative writing. I am sure you would find a local branch on the internet. I assume you would have to take a taxi, but it's just a suggestion. Best wishes.