Bit of an up and down week for me, my part time job quite literally went up in flames last week, when Primark Belfast caught fire and the beloved Bank Buildings got destroyed. I stood and watched her burn and I gotta tell ya, I was an emotional wreck! What a beautiful building with an amazing and defiant history. I really loved working in it. Jobs are safe for now but we need a new home in time for Christmas 🎄
However, I got good news today! Platelets have dropped again to 375!! Yay! I’m finally in the “normal” range! 😀
Doc has told me to stick with the Peg for another 4 weeks to see if I level out. Energy levels are not too bad either although I’m putting that all down to the Vit B I take as when I don’t take it I really feel the fatigue kicking back in.
Oh and grapefruit is bad 😂
Hope everyone is well!
Kerry
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Mackydee123
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Awful to see,My neighbouring farm,the ancient house there burned down ,we could only watch in horror,so fast,Iheld on to my neighbour,we were horror struck,so I can imagine how you felt,it's a sight you do not forget.Well done your platelets and being much better,Best to you,Sally
I saw that beautiful building on the news; It was quite upsetting to see, so I can imagine how you must feel. Again, in Liverpool last night another beautiful Art Deco building destroyed by fire.
Great news on the platelets however. Long may it continue.
Great news on your platelet count! I’m nearly there (465 today) after 8-9 weeks of interferon. Hopefully I’ll be able to move onto Peg once I’ve levelled out...i’m on “standard” interferon and at this rate (appointments spreading out) I’m going to need a bigger fridge 😂 haven’t tried Vit B...did the Haematologist suggest it, or your own research? I’ve not suffered with too much fatigue but every little helps!
Hi. Peg is a longer acting version of interferon, so you take it less often. I currently take “standard” interferon 4 times per week. With Peg, I think it would only be once. No big deal, other than storage in the fridge and disposal of 48 cardboard cartons for 12 weeks worth of meds...
Someone on here suggested it. Also magnesium but my Doc told me to hold off on it whilst starting the meds. 2000u Vit B under the tongue (I got it in Holland and Barrett’s) twice a day and I’ve got enough steam to keep me alert in work and make it past 8pm without falling asleep on the sofa!
It has not messed with my counts either so I would highly recommend it!
So so sorry to hear about you job, it was a very sad day, such beautiful buildings. But good to hear that your platelets are all good and in the normal range, let’s hope they find another store soon and in time for Christmas. 🎅🎄
Good news bout your platelets level......I am too in a normal range , slightly higher than you 411.
Had problem with dizziness and light headed feeling 4 weeks ago but since my dose was reduced from 90 mg to 45 a week I feel much better.
I also take heart tablet to stop my palpitations....to be honest Iam not having palpitations anymore but keep taking the tablet ( as doc instructed). Will ask when can i stop next time i see my doc.
Apparently my dizziness and heart palpitations could be side effects of higher dose of interferon.
Touch wood ...I feel better in myself but now Iam dealing with sleepless nights....
Does anyone expieriencing something similar.
I used to sleep so well at night....now I am Ian not....mayby that's another side effect of interferon.
I had restless sleep on my meds night so I started taking herbal Nytol after my injection and it works a charm!
Now it’s part I my routine, nice dinner, early night, jab, nytol, episode of something on tv and I fall asleep before it’s over for a dreamless full nights sleep 💤
Such a shame about the job but currently still being paid and just waiting to hear about a new premises. Was also so shocked to hear about the Littlewoods Building and the Art museum!! Crazy fires at the minute on such beautiful old buildings, it such a fast destruction! I know that Belfast City Council, the Heritage Committee and the Architectural Chambers are working together to save the Sandstone Clock Facade so hopefully they can restore at least that part.
Hi kerrx, like a lot of people i saw the Belfast primark go up in flames,very sad when a beautiful building which had stood so long gone in a flash. Could you further enlighten me regarding grapefruit & platelets? I know you should avoid grapefruit when taking statins. Atb tina.🤗
It’s something to do with the Peginterferon, it interacts with the medication...something I forgot last weekend out at a leaving do. Too many G&T’s with grapefruit and I had ants in my pants for days!!
Lesson learned...I was covered in bruises from the scratching 😖
Ha ha, your reply had me gagging! Great news about your platelets, i hope to follow you & elab in the "exclusive normal range club" tomorrow. Got a visit with Dr blood (haemo) don't think i've ever hit normal range. Hope a new building is soon found regarding work! Atb, tina🤗
Mixed feelings Kerry. Having something to do is so important for us. Getting up and sticking to a routine keeps me going. The loss off your beautiful building and the uncertainty of not having your job is a huge blow. It takes the icing off your cake knowing your platelets are down. I do hope they stay down for you. After almost three years of unstable platelets I will find out on the 11 September if the anagrelide I’ve been taken for 2 months continue to stablize them.
Oh I hope your platelets stabilise! I do feel so much better that mine are low now. Yes, the loss of the store is a huge shock. I still have my full time job but I had put Primark in place to provide part time income for when I return to Uni full time next year. A way to pay the rent while I gain my Law practicing certificate before returning to work at my firm, so that’s a lot of stress when I should be concentrating on the admissions process. The last thing I need at the minute is worrying if I can actually afford to finish my training for a career that I’ve sacrificed so much to achieve!
Anyway, the most important thing is that no one was hurt and that hopefully we get a new premises before Christmas. I have great support from my boss so hopefully things will fall into place.
Had a similar experience many years ago when the Railway Workshop I was attached to was burned down, it was by no means Art Deco but an emotional experience just the same But like the Phoenix it rose from the ashes and is still there even though I retired 9 years ago. Great news on the platlets though.
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PV jak2+ and new to all of this! 
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update on Azacitidine
platelets are in normal range
