Blood cancer: Is ET cancer or not? - MPN Voice

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Blood cancer

kp27kathleen profile image
21 Replies

Is ET cancer or not?

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kp27kathleen profile image
kp27kathleen
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21 Replies
Swede profile image
Swede

HI,

I think this question has been asked by everyone and yes it is.

kp27kathleen profile image
kp27kathleen in reply toSwede

Thank you I'm kind of new

Rachelthepotter profile image
Rachelthepotter

Yes. Its a chronic blood cancer.

Rachel

Elab profile image
Elab

Yes it is def blood cancer. Been diagnosed this year as well.

BloodZero profile image
BloodZero

The definition of cancer is "a disease caused by an uncontrolled division of abnormal cells in a part of the body."

So by that I would say yes it is.

kp27kathleen profile image
kp27kathleen

Thanks so much. When I have to fill in forms I needed to know for sure. Oh rats!!

socrates_8 profile image
socrates_8

Hey Kathleen... :-)

Welcome to our little community...

According to the World Health Organisation (WHO):

MPNs were called Myeloproliferative Diseases until 2008 when the World Health Organization reclassified them as blood cancers and renamed them Myeloproliferative Neoplasms.

There are three main types of MPNs:

Polycythemia vera (PV)

Essential thrombocythemia (ET)

Myelofibrosis (MF)

Certain leukemias, including chronic myelogenous leukemia, are also now considered Myeloproliferative Neoplasms.

Although myeloproliferative neoplasms can pose health risks, people with these conditions often live for many years after diagnosis. The choice of treatment and how well it works depends largely on the type of MPN.

Hope this helps...

Steve

(Sydney)

chrissie1959 profile image
chrissie1959

Yes it is blood cancer ,you can get a form from your doctor of hemotolgy for free prescriptions too x

Ebot profile image
Ebot

It is (as you know by now). But don’t panic! It’s chronic not acute. MPNers live for years! Useful though for free prescriptions (UK) and Critical Illness Cover claims and protection under disability discrimination legislation. Less helpful with regards to travel insurance etc. But we have ways and means around that one so just ask! All the best.

Meatloaf9 profile image
Meatloaf9 in reply toEbot

Can you really get free prescriptions if you have a ET diagnosis? Or PV or MF?

Ebot profile image
Ebot in reply toMeatloaf9

You most certainly can! There is a form (it has a number - don’t ask me which one!). Your GP surgery / pharmacy should have a stash or check the NHS website. You may need it signed by your haem, it depends how amenable your GP is. You’ll get a little exemption card. It applies to all prescribed meds not just the ones you take for your MPN.

111xxx888 profile image
111xxx888 in reply toEbot

IS THIS AVAILABLE IN THE USA

Ebot profile image
Ebot in reply to111xxx888

No idea. But I’m not sure whether any healthcare is ‘free’ in the USA??? Am sure us Brits are thanking our lucky stars for the NHS.

Mazcd profile image
MazcdPartnerMPNVoice in reply toEbot

it is FP92A form

Mackydee123 profile image
Mackydee123 in reply toEbot

Is there an equivalent for dental?

Ebot profile image
Ebot in reply toMackydee123

There was an exchange earlier and the answer seems to be ‘no’. Dental charges apply as usual.

Mackydee123 profile image
Mackydee123 in reply toEbot

Thanks :-)

lavender007 profile image
lavender007 in reply toEbot

Insurance from MIA covers all chronic conditions and not expensive, this company is managed by people who themselves have chronic illnesses.Check them out I have had great assistance from them.Good luck

Elab profile image
Elab

U can pick the form up from your gp surgery.( no need to book an appointment) Fill it in and give it back to reception desk. I have done it last week.

U still need to pay for your dental appointments.

Wyebird profile image
Wyebird

Yes. Definitely x

Tico profile image
Tico

WHO,the world health organization,defines it as a "myeloprolifertive neoplasm,therefore a blood cancer.but unfortunatley some drs are so ill informed about this rare condition that a lot of us wait ages for a diagnosis.then some drs refuse to believe a lot of the terrible symptoms we suffer with r all in our mind.that's why being on a great well informed site like this with people going through the same will bring u some comfort & feel like u r amongst friends.all the best & remember think positive u r not alone.x tico.

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