Patients’ forums 2018

[Mazcd]

We are very pleased to announce that we have now confirmed patients’ forums around the UK and in Dublin, which we are very excited about.

Patients’ forums are very relaxed and informal, the programme for all forums includes talks from specialist MPN consultants and MPN specialist nurses and patients. You will hear all the latest news about MPNs, new medications and trials/studies and what MPN Voice is doing to support you.

All forums are free to attend, family and friends are welcome. Regardless of where you live you are welcome to attend one or more or even all of the forums, if you are prepared to travel then we will be more than happy to see you.

You are required to book to attend any of the forums, we are restricted on numbers at any venue so do need to know who is attending, when booking please give details of your MPN, the names of your guests and any special dietary requirements, i.e. gluten free. Please do not ask to be booked on any forum via this forum, you must email [e-mail].

Full details for each forum are on our website, click on each of the links below for details.

Bournemouth – Thursday 5 July, 1 pm – 5 pm

mpnvoice.org.uk/get-involve...

Dublin – Saturday 14 July, 10 am – 5 pm

mpnvoice.org.uk/get-involve...

Liverpool – Friday 28 September, 1 pm – 5 pm

mpnvoice.org.uk/get-involve...

Nottingham – Thursday 4 October, 1 pm - 5 pm

mpnvoice.org.uk/get-involve...

Newcastle-upon-Tyne – Friday 12 October, 1 pm - 5 pm

mpnvoice.org.uk/get-involve...

London – Friday 23 November, 5.30 pm – 9 pm

mpnvoice.org.uk/get-involve...

Belfast – Saturday 8 September is nearly fully booked, but you can still book to attend

mpnvoice.org.uk/get-involve...

We are looking forward to seeing you at one or more, or even all of the forums.

We would like to thank the teams in each location for hosting the forum and for their involvement, without them we could not do it.

[susieq75]

Thanks Maz

Susieq

[Aime]

Thank you Maz. Is the London forum the same as last years or is it every second year, you hold the London Patient’s day or are they the same thing? Sorry to confuse. Kindest regards Aime xx😺😺

[Mazcd Partner MPNVoice in reply to Aime]

Hi Aime, the London forum is a normal patients' forum, not the same as the international patients' day we hold every other year. Best wishes, Maz xxx

[Aime in reply to Mazcd]

Thank you.xx😺😺

[pj1963]

Hi Maz

I'm surprised and disappointed there isn't one in Scotland. Is there any reason we've been excluded?

Paula

[Mazcd Partner MPNVoice in reply to pj1963]

Hi Paula, Scotland has not been excluded this year, we are just trying to sort out a date with the teams, so will be able to announce a date once we have the details. Kind regards, Maz.

[pj1963 in reply to Mazcd]

Ah, I see. Ok, Max. Many thanks

Paula

[pj1963 in reply to pj1963]

Sorry, Maz(!).

[EleanorPV in reply to Mazcd]

Thanks for the clarification Maz.

[eire]

Booked for Dublin. Looking forward to the day.

[DonaldOrr]

Hi Maz, was the video of the Patients day in London in 2017 ever completed and made available? Also no Scotland Patients Forum?

[Mazcd Partner MPNVoice in reply to DonaldOrr]

Hi Donald, sorting out the videos of patient day next week. Re Scotland, see answer above. Maz

[EleanorPV in reply to DonaldOrr]

Ah naw Donald, as much as I would love to hear the genetic consultant again. I’m not looking forward to my part haha.

[MCW22]

Any plans for one in Norfolk in the future?

[Mazcd Partner MPNVoice in reply to MCW22]

No sorry, no plans this year. Maz

[JaynieQ]

Thanks so much Maz! Ive emailed to book Liverpool and Newcastle but if demand is high I’m happy to go to just one.

Jaynie

[Wentry]

Thanks for the email correction, silly me and my ET brain 😁 Do you know how long it's likely to be before we hear confirmation of bookings so that I can book flights? Wendy

[Mazcd Partner MPNVoice in reply to Wentry]

Hi Wendy, I sent your confirmation email yesterday, hopefully you have received it. Maz x

[Wentry in reply to Mazcd]

Yes thank you Maz😃 So pleased that we have the opportunity to go! Can't wait 😁😁

Wendy x

[Phelpsy]

Hi Maz x

I sent a reply a few days ago

As usual Steve & Myself will be attending, do I need to fill The postal form I’ve received also .

Thanks looking forward to seeing you again ,

Pam x

[Mazcd Partner MPNVoice in reply to Phelpsy]

Hi Pam, I have put your names on the list, so no need to send the form. It will be lovely to see you both again. Maz x x

[Phelpsy in reply to Mazcd]

Great Maz ,

So looking forward to seeing you to

Hope your not working to hard

And your keeping well xx

[Mazcd Partner MPNVoice in reply to Phelpsy]

Hi Pam, I am very well thank you, hope all good with you. x x x

[Phelpsy in reply to Mazcd]

Yes all is good here ,

my 2 Grandchildren are keeping

me out of trouble 💗💙

Carter’s 2yrs & Reina is 5 months x

Nana Pam is very very Busy x

I love it though x