Good video re MF: Encouraging discussion of new... - MPN Voice

MPN Voice

10,445 members14,398 posts

Good video re MF

Paul123456 profile image
6 Replies

Encouraging discussion of new combo drugs and first mention I’ve seen of BCL-2 inhibitors which sound exciting.

The interviewee says that whilst there is no obvious cure for MF on the horizon, the current strategy is to keep patients alive for say 7 - 8 years by which time next batch of new drugs will be available to give another 7 years. Hence disease can be put on hold indefinitely.

patientpower.info/video/exp...

Written by
Paul123456 profile image
Paul123456
To view profiles and participate in discussions please or .
6 Replies
socrates_8 profile image
socrates_8

Thanks Paul... :-)

I found this clip most informative, and also providing some inspirational outcomes for alternative combination therapies for MF.

Greatly appreciated

Best wishes

Steve

Timjonze profile image
Timjonze

“A normal lifespan? That’s music to my ears”

It certainly is! Thanks for sharing Paul

mikerodol profile image
mikerodol

Interesting and encouraging video. Thank you Paul

pj1963 profile image
pj1963

Thank you for this, Paul. It certainly gives us all hope. And I too particularly liked to hear about the ‘normal lifespan’!

Paula

GuyMorgan01 profile image
GuyMorgan01

Great to know that research continues into MF and the other myleoprolific disorders. There is always hope for all of us and those that follow.☺

Meatloaf9 profile image
Meatloaf9

Thank you again Paul for posting this important video. Everyone needs Hope. Sounds like good things are in the pipeline.

You may also like...

Encouraging video re slowing MF

reatment-of-mpns?autoplay=1&utm_source=health-topic-alert&utm_medium=email&utm_campaign=MPN062018...

Dr Silver update re PV/MF and Interferons

first choice line of attack for over 20 years, hence significant experience re efficacy although...

Good news re allele burden

just the confirmation that Pegasys is a slow-acting drug and that it’s important to be patient.

Important opportunity to comment on NICE draft decision re Ruxolitinib for MF patients

but also importantly gain years of life with this drug. This decision is based upon cost not upon...

Some Good News re Covid help

help reduce the risks - they are trying to get a drug from it - but why not actually consume the...