Medication Review Update!

[Mackydee123]

So I met my new Consultant, she is happy that I’m a good candidate for meds as the migraines show evidence of blood flow restriction and is staring me on Pegasys 45mcg on Friday. She was very lovely, knowledgeable and listened to all my complaints lol. She wants to start me low to get my system used to it and then up my dose if required. So here we go, the first steps to dropping my numbers!! 🤞

[mhos61]

Sounds a sensible way forward in your case. Hope the pegasys relieves your symptoms.

Keep us updated.

Mary x

[Mazcd Partner MPNVoice]

good luck. Maz

[susieq75]

Delighted for you and I really hope it helps...thanks for the update

Susieq

[dgk70]

What did she say about ur forgetfulness? Or did u forget to mention it , lol , 😂

[Mackydee123 in reply to dgk70]

I came prepared with a list!! She said the fatigue and tiredness are the biggest complaints she hears as it can be debilitating but she said that migraines are evidence that blood flow is restricted...so I think restricted blood flow to the brain could be the problem...would certainly explain some of my issues 😂

K

[dgk70 in reply to Mackydee123]

I used to get headaches and dizzy spells but now my platelets are under control it’s just the fatigue and forgetfulness, 😩

[Mackydee123 in reply to dgk70]

I’ve just started taking high dose B12 2000u in the mornings, it’s apparently very good for fatigue and brain fog. Asked about taking Magnesium but my Doc said not for now while I’m starting Peg. Here’s hoping I’m skipping down the street remembering everyone’s name soon 😃

K

[Annushkah]

What helped migraines? Pegasy??