Meds: Has anyone ever gone off hydroxy... - MPN Voice

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Petsch profile image
7 Replies

Has anyone ever gone off hydroxy periodically I’m jak positive and would like a break from meds nce in a while.

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Petsch profile image
Petsch
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7 Replies
Kerri2 profile image
Kerri2

Petsch my dr currently has me off hydrea due to macrocytic anemia. Hgb is rising as well as platelets but keeping an eye on them. Not really sure I feel any better yet.

friendofpiglet profile image
friendofpiglet in reply to Kerri2

I stopped for the same reason back in November, my HCT got down to .28!

Only off for a fortnight then back on a reduced dose gradually increasing. Last counts more or less perfect.

Trouble is that because of the amaemia I didn't feel noticeably better.

Petsch profile image
Petsch in reply to friendofpiglet

From America what’s a fornight

friendofpiglet profile image
friendofpiglet in reply to Petsch

Fortnight! Two weeks......

Have a chat with your haemo. A lot will depend on your blood counts.

Mazcd profile image
MazcdPartnerMPNVoice

You must speak to your haematologist before stopping any medication, do not just stop taking it without checking. Maz

mhos61 profile image
mhos61

I suspect your platelets will rapidly increase. Platelets have a short life cycle.

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