New meds: I have my new prescription of hydroxy... - MPN Voice

MPN Voice

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New meds

nodmeister profile image
18 Replies

I have my new prescription of hydroxy one side, gin the other.... Think I'll start tomorrow. :)

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nodmeister profile image
nodmeister
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18 Replies
Inca profile image
Inca

Make mine Irish Whiskey and I am with you !!!

nodmeister profile image
nodmeister in reply toInca

That's O.K. with me!!

Inca profile image
Inca in reply tonodmeister

Sante then! Just getting up for apero ,baking hot here today,so knocked out with the heat,hopefully cooling a bit now...Enjoy your gin ,maybe later if you are U K. Best wishes.

Superwoman profile image
Superwoman

I have a glass of wine on the go, so cheers🍷

Jean

Inca profile image
Inca

A votre Sante !!cheers and good health!.....we need that don't we !

katiewalsh profile image
katiewalsh

I always feel like a downer, but.....all my docs say not to drink on HU (except an occasional drink is ok but better not to.) Katie

nodmeister profile image
nodmeister in reply tokatiewalsh

mine didn't mention alcohol and he knows I'm extremely partial to my gin😁

Superwoman profile image
Superwoman in reply tokatiewalsh

My Haematologist told me everthing in moderation is fine, just dont go on any benders, which is something I have never done. apart from my Hydroxycarbamide I do take other meds so have to be careful, but my attitude is that I did not ask to get ET so a little of what you fancy never hurts. Just make sure you drink plenty of water every day, that keeps everything flushed and also helps with body hydration, and enjoy life, we may of been dealt a blow with our respective MPNs, but hey at least now we know why we were in poor health, well in my case for many years. Just good to know there was something wrong with me, so take the drugs and I enjoy every aspect of my life and this great forum, has kept me going.

Jean

francesb profile image
francesb

Ha ha! Know the feeling. Good luck, hopefully you'll find the Hydroxy problem free. Best wishes, Frances

nodmeister profile image
nodmeister

Thanks all. I've downed the first tab and will see how it goes. My fearless hound loves his mooch down to the pub for the Sunday session. We'll see how it goes. Everything crossed🐾🐾💋

BrendaT profile image
BrendaT

Always a Pernod and then some red wine with dinner on Saturday nights - Been on Hydroxy 4 years now and no probs so far - We have all got to have some fun sometimes !

Inca profile image
Inca

Just an odd snifter is fine,lots of water all day is essential of course,7yrs of H U and other drugs has never affected my one apero of whiskey has not hurt me at all,my consultant knows I have it,knows also I don't touch wine or smoke and actually an odd glass of wine with water is not so bad either,as already said ,everything in moderation.!!Cheers all. !!

Moina-vdh profile image
Moina-vdh

Cheers! I hope it helps to find your courage to the other.... Good luck!

jillydabrat profile image
jillydabrat

Can't argue with you there lol

Sand-Dancer profile image
Sand-Dancer

When I asked about red wine my specialist nurse said he would be the last person to tell me not to drink alcohol.

That's good enough for me . 😀🍷 Cheers! Lesley x

nodmeister profile image
nodmeister in reply toSand-Dancer

Love it.😁

Mazcd profile image
MazcdPartnerMPNVoice

The advice in our booklet is that whilst it is safe to drink alcohol in moderation whilst taking Hydroxycarbamide, we recommend you do not exceed the recommended weekly limits of 21 units of alcohol per week for a man and 14 units for a woman. Alcohol can cause dehydration and it is important to avoid becoming dehydrated if you have an MPN, you should ask your nurse or doctor if you require any further information regarding alcohol consumption. Maz

nodmeister profile image
nodmeister in reply toMazcd

thanks Maz,, read the booklet on line yesterday. So far just an increase in itching, which I was warned about, otherwise fine. Have my 'social tipple' when I walk my fearless hound with other local reprobates.😁🐾🐾🍸

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