Patients’ forum Belfast CANCELLED– unfortunately due to the weather warnings issued for the UK we have had to very reluctantly cancel the forum in Belfast on Sat 3rd March. We will be arranging another date and hope to be able to hold the forum very soon. We will announce the details as soon as we can.
All our wonderful supporters did us proud in 2017 in organizing and taking part in so many different fundraising events, and it looks like you are all going to make this another fantastic year for MPN Voice.
We have some runners taking part in the Big Half Marathon on Sunday 4th March, hopefully the snow will have gone by then, it might not be too easy running in snow boots! Good luck to Arthur Tua (who is travelling from Malta to take part), Kelly Poutney and Laura Thornton who are all taking part and raising funds for MPN Voice.
For more about our fundraisers and the events they are taking part in to raise funds for MPN Voice please read the attached, you will also find details of all their fundraising pages so that you can sponsor these amazing people.
And finally, an invitation to take part in a study testing a new quality of life questionnaire
MPN patients in the UK are being invited by The European Hematology Association Scientific Working Group to take part in a study testing a new questionnaire which aims to support patients and their clinicians in discussing, addressing and better recording of quality of life issues that matter patients.
For more information about this study and details on how to take part please follow this link.