Aching at night

[Kwebb]

Is it common that joint and muscle aches increase at night when in bed ? Mine keep me awake.

[socrates_8]

Hey Kwebb...

Not sure what it is you are suffering from, however, I have MF & I almost always ache more of a night... I am usually aching through the day too, however, I can mostly distract myself through the days...

I am afraid that with most people with an MPN, this is a common complaint for us all...

There are possibly a myriad of ways to deal with it, yet we are all just a tad different & what works for one might not for another...

Sometimes, for me at least, it just seems like a continual search via trial & error, until one finds what works best for you...

Hope this helps a little...

Steve

(Sydney)

[Kwebb in reply to socrates_8]

I'm in the middle of polycycthemia investigations. Jax2 test came back negative . I'm now waiting for a nuclear red blood mass scan. Thanks for your advice.

[jane13]

yes, really bad, now have co-codamol from gp which gets me to sleep but the aches wake me up again after 4 hrs. take paracetamol through the day but it really needs anti-inflamatories which i can't take or the ulceration in my stomach hurts even worse! seriously effects my quality of life but no obvious solution.

[flfair]

Hi, have a look into MSM, I've just started taking it.

Peter

[clevemic]

My oncologist, who is highly regarded in the US, recently recommended taking Claritin for bone pain. Claritin is marketed as an allergy medicine, but for some unknown reason, helps with MPN pain. I tried it for the first time last week, and it actually worked!!

[Sheryljean in reply to clevemic]

Hi clevemic!

Would you be able to let me know the name of the doctors? I live in Washington state and my hematologist has agreed with me for me to try the cbt oil for the joints. I just sent an took a Claritin, from your suggestion, for I am in Las. Eggs for a wedding and the joints in the morning are not happy..a little cranky. The index finger is the worst..

Thank you for your suggestion!

[clevemic in reply to Sheryljean]

Sheryljean,

My doctor's name is Laura Michaelis from Froedtert Hospital in Wauwatosa, Wisconsin. Good luck!

[Sheryljean in reply to clevemic]

Thank you..do you happen to remember how long it took the clairatin to make a difference with the joint pain..

Sheryl

[clevemic]

Within 2 days, I was feeling relief. I continued to take Claritin for a few days, and have not taken it since. As with so many other MPN symptoms, the bone pain seemed to have come and gone, and it's now been replaced with new symptoms.