Schwannamatosis [NF3] or Neurofibromatosis [NF2] - MPN Voice

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Schwannamatosis [NF3] or Neurofibromatosis [NF2]

Adlon57 profile image
5 Replies

Just had results, testing whether I have one or the other, I have symptoms for both, more tests are lined up, I jokingly said maybe I have NF4? Does not exist, but she did not smile, maybe I have a new condition, "Adlonamatosis or NF4"? Medical magazine cover stuff? OOOH!!!

ADLON57

ps a bit of humour always brightens up the day!

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Adlon57 profile image
Adlon57
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5 Replies
mhos61 profile image
mhos61

Humour certainly does help.

👍

Adlon57 profile image
Adlon57 in reply tomhos61

As they said in the film 'Life of Brian' always look on the bright side of life!!

lynnieb profile image
lynnieb

Tumour humour?? Yep, know ALL about that. I'm lumpier than an old pillow

harleydavidson profile image
harleydavidson

Well done for being so cheerful, hope the tests go well. Mel x

Adlon57 profile image
Adlon57

Thanks, it's the waiting that gets me, one might be genetic [NF2] the other is'nt [NF3] so it is the rest of the family having some sort of link with the condition that I'm really worried about, are they affected?

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