Schwannamatosis [NF3] or Neurofibromatosis [NF2] - MPN Voice

MPN Voice

10,998 members15,379 posts

Schwannamatosis [NF3] or Neurofibromatosis [NF2]

Adlon57 profile image
5 Replies

Just had results, testing whether I have one or the other, I have symptoms for both, more tests are lined up, I jokingly said maybe I have NF4? Does not exist, but she did not smile, maybe I have a new condition, "Adlonamatosis or NF4"? Medical magazine cover stuff? OOOH!!!

ADLON57

ps a bit of humour always brightens up the day!

Written by
Adlon57 profile image
Adlon57
To view profiles and participate in discussions please or .
5 Replies
mhos61 profile image
mhos61

Humour certainly does help.

👍

Adlon57 profile image
Adlon57 in reply tomhos61

As they said in the film 'Life of Brian' always look on the bright side of life!!

lynnieb profile image
lynnieb

Tumour humour?? Yep, know ALL about that. I'm lumpier than an old pillow

harleydavidson profile image
harleydavidson

Well done for being so cheerful, hope the tests go well. Mel x

Adlon57 profile image
Adlon57

Thanks, it's the waiting that gets me, one might be genetic [NF2] the other is'nt [NF3] so it is the rest of the family having some sort of link with the condition that I'm really worried about, are they affected?

Not what you're looking for?

You may also like...

Aspirin or not Aspirin that is the question

Morning folks, Had a a call this morning from my local CCG long conversation short !!! There is no...
Superwoman profile image

To hydroxy or not to hydroxy

I’m sorry to keep asking questions as I try to come to terms with what you already have done, but...
WileyFrench profile image

has anyone gotten a rash on their feet from hydroxyurea or just having thrombocytosis

I am reaching out to you wonderful people again. I have a red blotchy rash on my feet and have had...
kitttycat profile image

9 weeks on Besremi: Update

I'm currently on a 1 month holding pattern of 100 mcg. I got new bloodwork yesterday. WBC is down...
Elizka profile image

Am I being negative or realistic?

I have been dx with ET. Took Hu for 8 days. Felt horrible , called specialist and came off HU. I am...
JAB6 profile image

Moderation team

Debinha profile image
DebinhaAdministrator
Mazcd profile image
MazcdPartner

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.