I was diagnosed with ET JAK2 -ve about 18 months ago. My platelets are usually around 1300. I take aspirin, but no other medication for the ET (but a lot for other conditions relating to my neurofibromatosis 1). My health isn't good, and hasn't been for many years, and getting diagnosed with ET was a blow. The thing is, I'm confused as to the criteria for medication. I don't want things to get worse, but then, nor do I want unnecessary medication. Also, how can I ever know if my extreme fatigue (as in, LITERALLY falling over in the shops because I fall asleep as soon as I stand still). I have lots of tumours, and they already bleed a huge amount when they are knocked, or post operatively, and now, because of the aspirin, they bleed even more. I had one removed last month from my foot that was tiny; the incision was an inch long. But dear god, the blood just wouldn't stop. So in a round about way I'm asking if I should be insisting on medication? How do I know if it is necessary? I don't go to my haematologist for a while, as my apt keeps getting cancelled. My GPs are not that clued up on ET and look at me blank when I ask anything. All in all, I'm asking for any advice.Thank you, kind people.