Lupus?

[rjw1]

Hi recently posted about possible Lupus...tests came back negative which is good,but now being tested for lymphoma...OMG

Does anyone have any views regarding PV migrating to lymphoma

best wishes

Richard

[Aime]

Hi Richard , sorry to hear you are having such a anxious time. I have PV too but so far so good. I know it is a very small chance of changing to one of the nasties but I also sympathise with the worry waiting for results causes.

There a large number of fellow PV sufferers on this forum who have had it for many years without transition to anything else so try not to worry (I know that's very hard to do) until you know you have something to be worried about because the stress of it all causes ill health too.

Keep in touch and let us know how you get on. Maz, our editor, may be able to link you to a buddy who has gone through similar experiences. Go to your medic appointments with all your questions written down so you can eliminate your worries, one by one.

Kindest regards and thinking about you. Aime x😺😺

[rjw1 in reply to Aime]

thanks Aime....will let you know

Richard

[Mazcd Partner MPNVoice]

Hi Richard, sorry to hear that you now have to wait for more test results, let us know how you get on, and as Aime said, if you want to have a buddy then please let me know, email me at [e-mail]. Best wishes, Maz

[rjw1 in reply to Mazcd]

thanks Maz...will let you know