I have had PV for 10 years. I have been participating in the Majic Study for a year; I am doing well on ruxolitinib. This medication is controlling cell production, and the fatigue and pruritus that was making me so poorly before I joined the study is a lot better. I feel very lucky as I have a much better quality of life.
If you are wondering about joining a study, do get all the info you can to help you make an informed decision before signing on the dotted line.