Hello again, I'm pleased to report that after my husband was transferred to St Thomas' hospital, they managed to stabilise his bleeding varices and ruled out the idea of a splenectomy. He's been on ruxilitinib for about 2 months now and this seems to be working well.
We took a short 1 hour flight last weekend and we think that this has caused a minor bleed as his HB levels this week had dropped to 67, although there have been no other signs of bleeding.
We are planning on flying to Seattle in August for a holiday, but are worried that the long flight could cause serious issues.
Has anyone had any similar experiences and is there any medication he can take to prevent bleeding?
When he was in hospital in April, the only thing that would stop the bleeding was Terliprezin, which is only available via IV.