PC and weight loss: Hi everybody.  I was diagnosed... - MPN Voice

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PC and weight loss

Splb3317 profile image
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Hi everybody.  I was diagnosed with PC a year ago and am managing well on Aspirin and venesections every 8 weeks or so. I am very fortunate as my worst symptoms are some fatigue and a blotchy face! My hct is now 40, so generally, I feel very lucky. 

 My big worry is weight loss. No matter how much I eat, I am steadily losing weight. I lose a pound or so every few weeks. I am now a dress size smaller than I was a year ago. I've never had a massive appetite so that has not changed, but I wondered if anyone else has had this problem. As far as I know, my spleen is not enlarged, but I'll ask the haemo to check it out when I see him in a few weeks.

It's so good to be able to speak to you all. I hope to meet some of you in Bath next Tuesday.

Sandra

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Splb3317
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Inca profile image
Inca

I am P V too,I put weight on after diagnosis and going on to Hydrea,was very skinny tho as was so poorly,now level at 50 kilos for 6 yrs,my venesection was stopped very soon ,as the medics here said I was too tiny to have blood removed so often....every country is different.Best to you Bon Courage,you will find great help here on the site .

Splb3317 profile image
Splb3317 in reply to Inca

Thank you Inca. I'll keep an eye on the weight and have a word with the doc. All the best to you.

Sandra.

Inca profile image
Inca in reply to Splb3317

Thanks Sandra,I had hoped to be at the Bath Forum,would love to meet the people on this site.Usually in U K at this time,but this year is not possible until later in the year,hope you benefit from it and get answers to your weight,so many issues with our very unusual disease.Keep Well,Sally

Splb3317 profile image
Splb3317 in reply to Inca

Thanks Inca. I'm really looking forward to the forum. Perhaps we'll meet some time. Kindest regards, Sandra

lizzziep profile image
lizzziep

I have ET and am on HU and have put weight on - having a lot of difficulty getting it off!!

XX

Splb3317 profile image
Splb3317 in reply to lizzziep

Oh Lizzie, it would be nice to have clothes that fit again.  At the moment, I seem to be fine without Hydroxy, so I have no alternative but to up my intake of chocolate! Only joking. I hope I am able to find some answers at the forum in Bath. Thanks for your reply, and good luck with the slimming. Sandra.

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