Hi everybody. I was diagnosed with PC a year ago and am managing well on Aspirin and venesections every 8 weeks or so. I am very fortunate as my worst symptoms are some fatigue and a blotchy face! My hct is now 40, so generally, I feel very lucky.
My big worry is weight loss. No matter how much I eat, I am steadily losing weight. I lose a pound or so every few weeks. I am now a dress size smaller than I was a year ago. I've never had a massive appetite so that has not changed, but I wondered if anyone else has had this problem. As far as I know, my spleen is not enlarged, but I'll ask the haemo to check it out when I see him in a few weeks.
It's so good to be able to speak to you all. I hope to meet some of you in Bath next Tuesday.