Had prv for many years , now got high intermediate MF and had a dose of CML. Been on rux for over 4 years. Yes it can be easy to focus on the disease rather than life. Today went walking in the High Peak and did a 10 mile walk with a good amount of climbing. Was disappointed that I didn't see a mountain hare as at this time of year they are usually visible in their pure white coat. Didn't ruin a really good day. Was nice to be out on the hills on my own enjoying great views, the wind in my hair, the cold on my face and frequent red grouse with their complaining cry as you disturb them.Went past a barn with an inscribed lintel that was dated before the Great Fire of London.
This is not the only exercise i have managed recently. Seen the most odd things like a rose in bloom in my neighbour's garden, rape in flower and hawthorn coming into life already and loads of cherry trees in blossom.
We voice our problems and ask for answers from other people with MPN's which is great but maybe sometimes we should just stand back and ask what can I still do, not what have I lost. Can you try a new recipe, read a new author, set yourself a challenge. It doesn't matter if you fail just that you tried.
I prefer to live with my glass full rather than empty. Also set a target of drinking 100 beers in a year last November, already up to 74. Should have tried to get sponsored!