Seems to me it's a lot to do with your state of mind ....

[Twinkly]

First requirement when living with an mpn ,is a strong attitude to being well. If we allow this horrible problem to rule our waking life ,it will get a strong hold..so I urge you to take control with a positive onslaught ...start everyday with a resolution to do more ..a longest journey starts with just a few steps !! I'm feeling better ,keep twinkling . Xx

[Hidden]

Thank you for that Twinkly , because i only found out recently , i have got myself really scared and bit down, im naturaly an anxious person anyway, but i get guess stress will not help i was told im jak2 so seeing heamatolgist 29th april will find out what happens next my platelet count around 475 506 i know its not as high alot of people on here but its not going down at all brst wishes to you 🌟

[Loubprv Volunteer]

Good moaning!

So glad you've picked up.

How I agree.

I've just a read a wonderful book called secrets from chuckling goat ( I know, odd title)

I heartily recommend it to everyone out there.

It's an amazing true story of an American lady who used to host a chat show in the states, gave it all up, came to the uk, married a welsh farmer who had ulcerative colitis. He went into hospital for a major op......I won't tell you any more because it will spoil the story, but it's a dead easy read, unputdownable so they say, and reiterates everything we believe in about positive state of mind, diet and lifestyle.

She believes in what is and not what if.

Fantastic. I'd love to meet her.

Have a good day.

Louise

x

[Twinkly in reply to Loubprv]

Hope you had a good and relaxing break ,Louise .

Meanwhile thanks for that info ..goats yogurt so good for the skin ,

I stayed on a very old fashioned goat farm in Poland ,for a week .

Learned so much ,from a very old wise grandad there ,,

Amazing what we pick up along the way ..twinkly xxxx

[Loubprv Volunteer]

Hi Violet,

Yes lovely break thanks. Blue blue sky -it was good to feel some warm spring sunshine.

We love Mallorca, the northern part, beautiful mountains, quaint villages, great walking and the scent of pine forests, just gorgeous.

Chilly wind in the evenings - we rented a sweet little town house in Pollenca with a charming owner.

It was Baltic in the evenings as no heat - despite miquel's attempts at cranking up the air con to puff pastry temperature.

The TV only had Spanish stuff so we ended up like Derby and Joan huddled under a blanket together watching numerous episodes of call the midwife ! Someone had left the box set.

Steve stoically sat there through all the births grunting and groaning, I think he secretly got to enjoy the stories in the end. What a sad pair we are!

x

[Twinkly in reply to Loubprv]

Hope you didn't come back pregnant Louise ,,the immaculate contraption !!

[Loubprv Volunteer]

Crikey.

What a dire thought! Quite impossible I can assure you......xx

[jeanr]

I'm glad you are feeling better. Yes I agree you have to keep moving forward and being positive. Those two friends of yours must help (in the photo). I decided I had to do something else- so I've started walking first thing, shower, dress out the door for 45 mins. Something else to focus on. I still have my moments of panic but not as much as I used to. I should add being 70 I have a lot of aches and pains after walking but I do sleep longer now. Enjoy your day.

[Twinkly in reply to jeanr]

Jean ,I'm really glad to hear from you ,and your routine sounds just right ,it's that regularity and healthy options that keep us moving ,,use it or lose it ..they say ,don't they ,,my dogs do demand my time and energy ,,it's true..and I really do understand ,,about the aches ,I'm 70 as well ,but don't tell everybody A,, twinkly. X

[lizzziep]

You don't look 70!!! It must be dog owning that keeps you young. I've got 2 beautiful dogs!!! Keep well. X