will there be a living with mpd's day 2015?

[kentuckyrain]

just wondering? traveled over from dublin last year and found it helpful

[Shelly1960]

hi can I ask what was usful as wasn't on the site last year still learning

[Mazcd Partner MPNVoice in reply to Shelly1960]

HI Shelly, there are video presentations from the day on our website, this link will take you to the page, mpdvoice.org.uk/get-involve..., all the presentations were given by leading MPN experts, also on the website are the video presentations given on the day before the patient day, these presentations were given to all the healthcare professionals who attended the day mpdvoice.org.uk/get-involve... I hope you find them interesting. Maz

[kentuckyrain]

hiya i didnt know what to expect going. i was going for my seven year old daughter that has ET, i came away from the day feeling more positive than i have since she was diagnosed at four. There is so much going on in the world of mpd's world wide its very reassuring to hear the experts and talk to other patients and hear their stories. Was nice to see other patients that are 'living' with ET for a long time and still doing well

[Shelly1960 in reply to kentuckyrain]

ty fir sharing

[Mazcd Partner MPNVoice]

Hi Kentuckyrain, yes we will be having another living with MPNs day this year in November in London, I will announce details as soon as they are available. Hope you can come again. Maz

[liarose in reply to Mazcd]

Any sign of a Cambridge forum yet?

[Mazcd Partner MPNVoice in reply to liarose]

Hi Liarose, not at the moment, these are the only ones we have confirmed at the moment, we are in talks to hold one in Nottingham and will also be having one in London, we will let everyone know as soon as we have details of other forums. Maz

[Loubprv Volunteer]

Morning Maz!

I'd just like to say for anyone who hasn't attended a formal forum, and the patients day, how very worthwhile they are.

The consultants and haematologists are a wealth of knowledge ( obviously ! ) and happy to answer any questions you might have.

They're also a brilliant opportunity to meet up with other like minded patients and share experiences.

Louise