I have just come back from A long trip to Niagra Falls Washington and New York . I was diagnosed with ET in May . I was worried about the flight and the very long coach journeys ( we did 1500 miles!) but I drank plenty of water and moved as much as I could . We booked before my diagnosis and the insurance which we get through the bank honoured it . I met 3 pharmacists on the coach that were studying oncology and they had heard of MPN's !! I asked one of them to look into weight gain with hydroxy as I now resemble a baby elephant since taking it ( 11 a week ) and whenever I ask the heamatoligist she says never heard of that .
What I'm trying to say is I'm not going to let this disease hold me back but it does take the dairy off things especially as I still wake up a few mornings and think oh s@£t I have cancer and why are my boobs growing so much ! Lol x