When we read of the heartache and in some cases misinformation people, at such a vulnerable time, especially at diagnosis have to go through, would it be possible for someone to update some of these institutions on the definition of MPNs.Many GPs have to look up the internet to find out what an MPD is and many websites still define this group as potentially precancerous conditions and have not updated their websites to MPN as opposed to MPDs including the massively important MacMillan Cancer Support charity. The contributor on this website who's GP consistently refuses her request for free prescriptions bears out the serious effect of this misinformation. I know my own GPs still do not regard it as a form of cancer.
What do you think Maz? If you could read the MacMillan information which is dished out to new patients you will see it is seriously out of date.