My mother has myelo fibrosis. She was diagnosed 13 years ago. She has had regular blood transfusions for the past three years. She is getting weaker and is suffering from breathlessness & anxiety. Her tranfusions seem to be getting less effective. At some point she may prefer not to continue with transfusions which obviously would make her even weaker & increase her difficulty in breathing. Has anyone had family members go through this end of life scenario & how did they manage? We have recently established contact with our local hospice.