My mother has myelo fibrosis. She was diagnosed 13 years ago. She has had regular blood transfusions for the past three years. She is getting weaker and is suffering from breathlessness & anxiety. Her tranfusions seem to be getting less effective. At some point she may prefer not to continue with transfusions which obviously would make her even weaker & increase her difficulty in breathing. Has anyone had family members go through this end of life scenario & how did they manage? We have recently established contact with our local hospice.
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.