I have ET and I have been on Hydroxycarbamide fo... - MPN Voice

MPN Voice

10,832 members15,126 posts

I have ET and I have been on Hydroxycarbamide for 18 months and my platelet count has been static for the last year down at around 420.

7 Replies

At my last check my count had dropped down to 310. I am due for a further check in August, is this sudden drop anything I should worry about or can this just happen?

Read more about...
7 Replies
BlessedWithSix profile image
BlessedWithSix

It sometimes happens.

catkinspolymer profile image
catkinspolymer

I have had ET for 20 years now and my platelets go between 150 to 550 . I slightly increase or decrease my dose of HU now HC I suppose in the range of 10 tablets a week to 14 a week depending if I am near the limits.Hope this helps

Town crier

Swede profile image
Swede

Hello, I agree with previous answers. Platelets are funny things and they seem to decrease or increase for no reason. I have been quite stable the last three years so just small changes for me.

MLA

OK thanks for the answers, I will just wait and see. They have had very minor changes over the last 12 to 15 months since I have been on 14 tablets a week, just surprised to see them drop by 25% at one go.

ballycool profile image
ballycool

I don't think you should worry, I have been on 14 tabs per week for about 14 months now and my platelets have gone up and down between 141 and 450 over this time. As long as they remain within the acceptable range that is the main thing. Your consultant should reassure you re this. Good luck, hope you keep well.

sutherland profile image
sutherland

No need to worry. Platelet count of 310 is fine. If it was going the other way I might be concerned.

Take care.

Seea profile image
Seea

Hi Yorkie

It is a positive thing that your platelets go down. I find with rest and relaxation it drops platelet count and with stress it increases platelet count.

If it got below 150 that would be reason for concern.

Not what you're looking for?

You may also like...

I have Jak 2 and ET. My platelet count is 700. The other labs are good.

The doc says I am stable and can continue on just a baby aspirin . I am somewhat relieved but...
milw532 profile image

Hi, I was diagnosed with ET 18 months ago and am on aspirin. My platelets are on the move and my Haem wants me to consider hydroxycarbamide

I'm not sure which I'm more afraid of, a chemo drug or a stroke. Anyone else faced this dilemma?

I have had ET for about six years now and it has been quiet. I actually thought my haemo was making it up! Recently though

in the past 6-8 months I have had incessent itching, been feeling very tired to the point where I...
tracyfoltan profile image

If symptoms get worse with ET, could this mean my platelet count has gone higher? I have a haematology appt in 2 weeks.

Should I contact my doctor sooner? Started treatment last year, symptoms disappeared but have now...
LRH1977 profile image

I have ET. Can increased stress, for instance due to a demanding work schedule, lead to an increased platelet count?

I am hoping to return to work following a liver transplant six months ago. I have well established...
nickprich profile image