migraine - epilepsy

[Hama123]

hello,

me again I’m new to this site so have a few different questions.

I just wondered if anyone had the same symptoms or have had this concern. I have suffered with migraines for years. I had migraines since a little girl but maybe have had two a year when I was young. Unfortunately my migraines have got alot worse in the past 5 years and currently I get a migraine once a month once a week depending.

With my migraines before I would get tingly arms and hands and one side of my face. I would get aura in my eye flashing lights, sickness, banging headache and feel very confused.

Recently I have noticed my symptoms have changed. I don’t get aura anymore or sickness. However I have noticed that I become completely dazed out. I know that people are talking to me however I am unsure to how respond or what they really are saying. I sort of feel like I’m in my body but also out of it at the same time (if that makes any sense). I don’t always get a massive headache like I did at the start sometimes after it will kick in but not all the time. It’s as though my body then goes into shut down and I have to go and lay down and I fall asleep.

One of my work colleagues mentioned that her other half has epilepsy and explained that some of the systems I have and the way I am when it’s happening is the same as her other half. I have explained to my doctor this but each time I get old try this tablets up the dosage etc etc and not alot more than that.

I’m slightly concerned that maybe there is something more going on. I don’t know many people with chronic migraines so I’m Interested to see if anyone else suffers in the same way. I have also noticed that over the years taking tablets actually makes my symptoms worse so I have coke of tablets recently. I just take zolmitripran (however you spell it haha) when I’m having a episode.

Thanks

[Bobherts]

hello Hama123

Google depersonlization disorder or derealization disorder and you may find the subject interesting and familiar.

I suffer the same way as you as if your there but not, i feel like im walking in treacle and my conversation is slurry and brain fog all over the place but my colleagues at work cant tell any real difference.

Ive just read the articles on derealization and will bring it up with i see a neurologist on october for left facial pain ive gad since November.

[Hama123 in reply to Bobherts]

oh wow thank you for this I have just had a good read and can totally relate. My only concern is after I feel like this is normally have to to and lay down and then after sometimes my head begins to bang. So unsure if maybe it’s a mixture of this and my migraines.

It’s rather strange feeling isn’t it. I am so glad someone else understands how I feel as often I will say ‘I think I’m going crazy’ because I feel like I am there and I know I’m there but I’m not really there. All a bit of a muddle but I’m glad I’m not the only one

[Bobherts in reply to Hama123]

im no expert but i think it maybe the way our brain reacts when we get migraines.

I had a suspected strike 6 years ago and it was diagnosed as migraine with Aura.

I currently take propranolol and Pregabalin which up until now have been good .

Recently the spaced out derealization has come back .

After reading the articles i realise they are just my brain working differently and do not panic as much as i used too.

[Francesca21]

sounds possibly hormonal. U could / should ask for a neurologist referral, however most of us further down the line know for every good neurologist there are a dozen uninterested ones. Rule out some basics first with a neurologist but professor anne Macgregor in london is specialist in hormonal migraines. She taught me the body hates fluctuating hormones. And was kind enough to persuade me to cancel my appt with her saving me £300 as she knew couldnt help me. She could have just taken my money! Other neurologists have ! As referral wer denied during covid so unfortunately long waiting lists. If u can afford pay for one initial appt with either a neuro or professor Anne. But you want your mri ct and bloods done on nhs . I hope this helps

[Hama123 in reply to Francesca21]

thank you so much I will definitely have a look into this