Topiramate : I've been taking... - National Migraine...

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Topiramate

Gardenlassy profile image
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I've been taking topiramate now for about 4 months as a preventative for my migraines & have found it to be a great relief, started slowly now on 3 tablets a day. Found did cause insomnia but by taking 2 tablets am & the second before 8pm has helped with this. It's helped with keeping my weight down by keeping hunger pangs away so much better then several other preventative drugs that piled on the pounds. I'd say give it a try.

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Gardenlassy
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Johnny-One profile image
Johnny-One

I have been on Topiramate 450 mg per day for 14 years now; 5 tablets a day. This is two on a morning and three on an evening. I can go up to 1,000 mg, but the most I have seen anyone on is 500 mg.

Some people say about memory loss, and others say about weight loss, i.e. you forget whether you have eaten or not. I think using any strong drug you need to be careful, but I have not suffered weight loss ... I wish!

With memory loss, when I first started using it, I was finding I occasionally started forgetting words, but could not decide whether that was due to other conditions or not, so I started taking Omega Fish Oil, which is supposed to help with brain functions. I have not suffered since. Now is this because I am taking Omega Fish Oil or just because I believe it is good for me?

I was asked by my neurologist to measure my headaches from 1 to 10, and also the frequency. With 10 being the worst possible. I used to be on a 9 or a 10 most days. I now get about 2 or 3 headaches a month maximum and the most I get as severity goes is a 5 or 6, and even that is rare.

I have two degrees, know over thirty programming languages, recently taught myself two new ones, and so I keep myself mentally challenged constantly. I am still a black belt in Judo (although am not allowed to do this anymore), can still swim and walk about four miles each day, so am reasonably fit for my age, but not an athlete.

As an aside, I am also taking Gabapentin because my headaches were interfering with my sleep patterns, 400 mg each night. Gabapentin is now classed as a Category C drug. Once again, I am allowed up to 1,000 mg but I found at 600 mg I was not as alert the next day, so cut back down to 400 mg. I am now able to sleep at night, without my headaches interfering with my sleep.

I am also a narcoleptic sufferer, and have chronic lung issues, so am not as active as I used to be 15 years ago.

I really hope that helps, and gives you an insight. To look at me there does not look like there is anything wrong with me, and that is the way I want to keep it. I want to keep as fit as I can.

The one thing I would stress though is everyone’s normal is different. Good luck.

bluesweets profile image
bluesweets

I take Topiramate 100mg in the morning and again before I go to bed. I been taking this for about 6 years. I also been doing Botox every 12 weeks been doing that for about 3 years. It really helps me a lot but by the 10th week I am ready for my dose again. So my doctor this time is going to see if my insurance company will pay for 10 weeks out so I can get it then.

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