Cluster Migraine

[H8hustle]

Does anyone suffer with Clusters? I take sumatriptan injections, verapamil and oxygen for mine, interested in views and any tips ?

[bobbie-jo]

I take cluster headaches too. I am on sumatriptan nasal spray and verapamil. As I am a smoker I can't have oxygen at home.

[H8hustle in reply to bobbie-jo]

Feel for you, the oxygen helps curve the pain and really helps, worth kicking smoking in as it is a life saver for me, I struggle with the verapamil side effects but don’t want the alternatives, I have a great neurological consultant who specialises in Clusters, and I did try GammaCore until the funding was cut😢hope you survive the episodes as mine have kicked in early this year

[babs1234 in reply to H8hustle]

Why has your funding stopped? I have Gammacore on prescription no problem however I have stopped it myself as I found aa with everything else it stopped being helpful

[H8hustle in reply to babs1234]

That’s interesting it was my local authority CCG who stopped the funding

[babs1234 in reply to H8hustle]

Where are you based

[H8hustle in reply to babs1234]

Gloucestershire 👍