Idk

Hi I recently been to the hospital I was there for 3 days and was diagnosed with migraines the funny thing is I've never had any bad headaches. Barely any normal headaches. It started a week ago and they did a lot of test they did find two small lesions in my brain but said it was from the migraines but here are my symptoms. I feel like I'm not me my vision can't focus and I feel dizzy all day all the time it's hard to walk right. and the more I think about this I feel like I'm dying and I have trouble breathing like someone is sitting on me. They just send me home and I feel exactly the same they game me medicine to prevent migraines but that's not doing anything at all. I need help I feel so scared and with panick

6 Replies

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  • Have you thought about asking for a second opinion? If it doesn't seem like the right diagnosis to you and you are going to make yourself sick over thinking you have all kinds of other illnesses, it might be worth it. I have never heard of lesions showing on a scan from migraines, but it may be possible; they are the ones with the expertise. I just know that I went through the same thing when my migraines started at 50 due to hormonal changes, I kept thinking I had all kinds of diseases, brain tumours etc and made myself sick from worrying... In the end, it was truly migraines ( in my case), as it has been 3 and 1/2 years now. Good luck!

  • Did they do ENT assessment to check whether this was linked to your ears? Sounds a bit like vertigo or menieres? You should go back and ask for a second opinion. Good luck.

  • I agree you need a second opinion. Go and see your GP asap. Take someone with you if you think the GP might not take you seriously. And of course if things are very bad, go back to hospital.

    If it is migraine though, unfortunately migraine can be very very disabling. There are different types of migraine as well and some do make you very dizzy or have vertigo.

    So you need to rule out other things, and then if it is migraine ask to see a specialist who can determine exactly what is going on and what is the most appropriate medication in your case, it isn't usually one-size-fits-all.

  • You need to get tested for Hughes Syndrome/APS, all three tests:

    Anticardiolipin Antibodies (aCL)

    Test

    Sometimes referred to as Antiphospholipid

    Positive in 80% of cases

    Higher Levels = Higher risk of Thrombosis

    Lupus Anticoagulant (LA) **

    Test

    Positive in 30-40% of cases

    Cannot be used if patient is on warfarin

    Beta2GP1

    Test

    This is a newer test, not routinely performed, but occasionally positivite when the above two tests are negative

    Also family history relevant, migraines, thyroid problems other autoimmune conditions, alongside heart attacks or strokes at an early age, plus miscarriages and stllbirth. Also very relavant to test your Thyroid, plus Iron, B12 and D. It is not uncommon to find the lesions you describe.

    MaryF

  • Oh dear. I am so sorry for you, that is exactly how I felt. I wonder if your medication could be making you feel worse. I was on topiramate and started thinking about suicide I felt so bad, ( I've never suffered from depression or any mental health issues.)

    I have never had headaches. All my symptoms were dizziness and nausea and extreme tiredness. The medication caused anxiety and depression and a whole host of new symptoms which resolved when I came off it. I am on Flunarizine now which has helped a lot.

  • Hi Candy

    Sorry to hear about your dizzy spells.

    It might be worth asking your GP for a medication such as 'Prochlorperazine 'otherwise known as Stemetil, if you have not already got it. Try getting up slowly and also slow deep breathing every so often.

    Hope you feel better soon.

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