working through a week long cluster headache

[Lola04]

Hello everyone i've just joined . Suffered migraine for 20 yrs now and didn't know there was a help community

[Cally01]

Welcome Lola 😆 your in the right place you'll get lots of support & advice here.

Any questions you have or if you just need to talk to people who know what your going through ...it's here 😆

[Lola04]

Thank you Cally01 is certainly good to know we all more or less going through same symptoms. Doctors can be so unsympathetic and sometimes feels like a losing battle

[Cally01 in reply to Lola04]

Yeah you're right there Lola. You'll learn a lot more here . Take a look through the posts and see if anything can help you/ something new to try 😆

The pevention meds get lots of reviews some good and some bad. Personally i found them all horrific and take none. My vice us ice on my temples and back of my head.

Be well 😆

[HJMac in reply to Cally01]

Yeah I wish I liked the prevention meds, not tried all of them though. ...

I use heat a lot, and 4head, I use it every day, does really help, I hope it's not affecting my skin adversely 🙄🙄

[Cally01 in reply to HJMac]

Gawd hope not HJMac 😱 wee don't seem to escape much 😣. Funny how some like heat and others like ice. Heat makes me worse. I used to go through loads of 4head, deepfreeze, volterall, painstop.... all my bags were full of tablets /creams.

My cefaly feels like it's helping just now.

Be well 😆

[PattiJay]

Hi Lola04!

I just joined a few months ago as well! I should say that next week I will begin round 2 of Botox treatment, I thought that by now I would be off of my other headache medications such as Relpax when needed (still need it) and daily 200mg Topamax 2x (100 mg) twice a day! It was hard for me to get used to my migraine meds starting in Feb. 2015 weaning up to what I'm on now. I started Botox in August of this year, and my third month is up...so here I go for round 2 and I am very confident that this will be the best month because by the middle of October I was feeling like the Botox and I had made friends at last. I sort of felt less nauseous and dizzy, my headaches were definitely improved, and even though I had a few major headaches and one SEVERE really bad headache which ALMOST sent me to ER...Fortunately I just got some relief after 3-4 hours of meds, that was it in 3 months. Mine were bad these past few years ...do I recommend Botox? I do. Let's see how it goes next session everyone! BTW, last Wednesday I sustained a concussion by cracking my head on a steel bar. I jumped up full force NOT seeing the bar and BAM!! I HIT THE BAR with my HEAD!

I've been not feeling too good all week, taking Tramadol, and staying home, I went to the ER and they did a CT scan...no brain bleed or fracture, I'm taking Xarelto so it could've been worse. Why would I do that, geez! Oh well, I do think I'd be feeling worse if I didn't have Botox right now! For ALL of you migraine sufferers...this is a horrible disease and it throws a wrench in everything! My prayers! I hope you are going to a neurologist at least and are trying medications and talking about Botox! Chin up, Good luck, and God Bless!