Hi all could anyone tell me if they h... - National Migraine...

National Migraine Centre

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Hi all could anyone tell me if they have had any dealings with the migraine surgery centre ? I filled in a questionnaire on a web site about

Poppet1 profile image
9 Replies

My migraines and they contacted me saying I would be a good candidate for the treatment I just wondered if anyone else had been or heard of them.

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Juliapester3 profile image
Juliapester3

Hi poppet , if you are a candidate you will then have Botox to see if freezing the muscles helps with the pain. If it does the muscles are surgically removed. I did this in 2011 and had the migraine surgery. Unfortunately I,m not a success story, the pain around my eye is minimal but the throbbing now goes through the back of my head/neck along with all the neurological symptoms. I was told that I was unlucky and this happens to 1/100 patients but I,ll let you be the judge of that! I have found much better relief from reading a book called the migraine revolution by Martin Brink and following this mans advice. I would reccomend this over surgery and at £30 is a LOT cheaper! Good luck with whatever you decide :)

Poppet1 profile image
Poppet1 in reply toJuliapester3

Thanks for that I am still thinking about wot to do next not to sure what to do

I had the initial Botox injections about three years ago. Unfortunately, they made absolutely no difference to my migraines so I was not considered to be a suitable candidate for the muscle removal.

Whynoexercise profile image
Whynoexercise

Can any one exercise with their migraines?

teadrinker profile image
teadrinker in reply toWhynoexercise

Provided I am well I have no problems with exercising (except my own lack of motivation), including a weekly zumba class. Exercise doesn't trigger migraines for me. I have tried to exercise when I've been recovering from a migraine - bit stupid really, better to rest.

Whynoexercise profile image
Whynoexercise

That's great . Unfortunately for me these days any aerobic activity can really set me back . I can feel well for a few days then exercise and then be back to bed for days on end as a result despite eating drinking plenty around time of exercise and afterwards . Doing better with hill walking than other forms so pushing that but that seems a bit less accessible and more time consuming than any activities . Not like a 30 minute run or swim or cycle ride . Neurologists just shrug . Doesn't seem BP related as now on candesartan and therefore lower than normal . Wasn't like this when I had episodic migraine . Any one with similar difficulties overcome would love to hear ..

smileyday profile image
smileyday

I have not had any dealings with the Migraine surgery centre, however I have had the nerve decompression (migraine trigger) surgery and have not had a migraine since the day of my surgery. If you are a candidate I recommend speaking with doctors about the surgery. Find out how many the doctor has performed how frequently. You wont regret looking into this. Good Luck!

Poppet1 profile image
Poppet1 in reply tosmileyday

Thanks for that not to sure what to do yet I am so cheesed off with getting these heads every two weeks so fed up I really don't know what to do iam getting so down about them the thing is I don't really call it a headache it's jus ya very bad pain over my eye and it lasts for three day the only thing that takes it off is sumatramapan tabs which makes you feel rubbish

KateArn79 profile image
KateArn79 in reply tosmileyday

Hi, I've just come across your post, I know it's 3 years ago! But I'm just looking into the surgery and just wondered if you'd mind giving me some details about your experience please?? I'm unsure what to do and trying to gather as much info as possible . Many thanks

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