migraines

[Freddy1000]

I get migraines quite frequently, and really deep ones that last hours , I get the pain at back of my neck and around my eyes and front of the head , I don’t get aura but I do get very muffled hearing and tinnitus , even tough its muffled it’s very loud sharp like paper being scrunched, I recently had unrelated scans, ct and mri and they are clear , here’s the odd bit , they always come on around 1pm I can sometimes tell I’m going to get one when I wake up , it either turns into one or just a thick head feeling , I take a lot of meds in the morning and wonder if they are having some sort of effect, but on the other hand I can go 10 days without a migraine and then a run of days where I do get them . I’ve tried so many things to try and alleviate symptoms but only get more confused .Anyone’s out there with a similar pattern or can give me some input going forward.

Thanks Col .

[Cat00]

This is a very common pattern in the chronic migraine community. I have roughly the same amount of headaches most months but they won't come in a particularly discernable pattern.Although mainly manifest in the morning they can essentially come at any time.

I've had chronic migraines for 30 years, but only in the last 3 have they been triggered by barometric pressure. Its maddening, you'd think you'd understand them in 30 years but they're still doing weird things now 🤷..

[Freddy1000 in reply to Cat00]

I’ve had them on and off for 36year after a brain tumour , they never really bothered me that much , but in the last 5year been awful , I try lots of diff methods and think ah I’ve nailed it when I’ve been clear a week or two then bang off we go again , neurology can’t even work them out .

Thanks for your reply .

[Cat00 in reply to Freddy1000]

I've had about 20 different treatments now, I have very bad years and not so bad years but the longest I've had without them is almost 3 weeks. They are generally much milder with treatment though at least. I should think a brain tumour complicates the process further.

The general rule of thumb is to try and create a calmer less excitable brain and that should raise the threshold for triggers, but obviously that's easier said than done and can lead for a very boring existence!