A post on hope (Sorry for the long post) ☀️
I suffer from migraines since age 6 and have learned a lot from my parents on what they went through. So, I highly value this great support group. And I want to get active to make all children’s lives with migraines a bit brighter! So, I would be grateful to learn from your stories and understand where improvement is needed most! (Just comment or DM me)
By sharing my story and learnings, hope to contribute to this great support group and give you some hope.
My migraines started with abdominal issues at age 4. At age six they turned into migraines (without aura). My parents, as I have also seen with all you here, were extremely proactive, getting me appointments everywhere to find out what was wrong. As often, nobody found an organic cause. “There is nothing wrong. Try some pain killers it will help somehow.” - It did not in most of the time.
The lack of a clear direction from GPs or experts did not concern me as a child that much but definitely my parents. They felt helpless and frustrated that they could not help other than trying to soothe me. For me, as a child, I was more occupied with how it affected my daily life. The thought of planned school trips always had me worrying and overthinking about what might happen when my migraines come back. This fear was agonizing and I felt ashamed in front of my classmates. Even worse, I felt angry with myself that my head kept me from being a “normal” kid.
I have to admit that I was lucky. My migraines got better after puberty. Even if the intensity increased and duration became longer, the frequency reduced and I learned how to deal with my migraines in known and unknown situations. I still do not have “the one” solution for improvement but I tried a lot of different, non-pharmacological strategies. They helped me to at least deal with the emotional and social implications of my condition.
Still, looking back at my childhood and what my parents went through with me having troubles physically but also emotionally, I don’t want to rest on this improvement. I want to find a way to make other children’s and adolescents’ lives with migraines easier.
On my journey to find some guidance or strategy that can help children like yours, like me, I would be happy to get your feedback. Where is the most effort needed? What are the biggest struggles for you and your child? This way, I can find out where we together can act to improve the lives of young migraine sufferers.
DM me if you would be willing to help me help.