I am very fortunate to be recovering from chronic meningitis, which I had late 2011. Most of 2012 was a tough slog, but I've been fortunate to improve throughout the year and head into 2013 very optimistic. Had some complications that delayed my recovery, but seemingly mending well now.
While I ask my doctors plenty of questions, Chronic Meningitis seems to be a fairly rare type of meningitis and there isn't much I have learned. I haven't yet seen any posts anywhere about fellow patients, I really hope to do so through this post.
I have lost my sense of what it is like to feel 'normal' but my headaches are much less frequent now and I am gradually building up some strength and fitness through regular visits I the gym. I do have neck pain, which extends up the back of my skull and I always wake up worse than the night before when I've gone to sleep, but then gradually improve each day.
Very interested to make contact with anyone who has had, or has chronic meningitis, or who knows more about it and could steer me towards some resources. I am seeking to better manage my issues, understand my longer term prognosis and generally get a sense of where my experience lies relative to others.
Thanks for reading this post and I hope you or your loved ones make a full recovery from meningitis. I'd be happy to share my own experiences with anyone who is likewise seeking knowledge on related topics, ie Viral, Aseptic or other types of related Meningitis.