8 month old had Meningococcal Sepsis and Me... - Meningitis Now

Meningitis Now

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8 month old had Meningococcal Sepsis and Meningitis

MissyMoo1313 profile image
2 Replies

My 8 month old son was diagnosed with Meningococcal Sepsis which lead to bacterial Meningitis. He was in PICU for 6 days, hospitalized for 2 weeks. We have since returned home with a few sepsis scabs which are healing beautifully.

His legs however are quite weak, but still have control and movement. He use to be able to stand on them well but is struggling now. His eyes are more sucken in and have dark circles (bags). He's also congested (but he did have alot of fluid on his lungs during PICU) and still passing alot of stools giving him the worst bum rash. Are these normal after effects or concerning ones?

We do have a follow up GP appointment next week, a nurse who comes over to measure his head daily, but isnt the one to ask questions about it.. and I'm meant to be hearing from a Developmental Specialist soon..

The entire ordeal of my son going through this has left me with crippling anxiety and always feeling overwhelmed. I need to stay strong for him but it's hard. I feel so uneducated about all of this and researching it isn't helping my anxiety at all. Thank you for reading this far.

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MissyMoo1313 profile image
MissyMoo1313
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2 Replies
MissisF profile image
MissisF

I’m afraid I can’t advise as I had this awful illness as an adult it took me more than a year to get back to work but I did recover completely so hopefully baby will be the same. It must be unbelievably scary for a parent with a child who cannot tell them how he feels and I’m sure you’re not alone . I’m not sure if you’ve gone down this route but the charity ‘Meningitis Now’ have lots of resources

meningitisnow.org/how-we-help

To contact your local Community Support Officer, please telephone the Helpline on 0808 80 10 388 or email helpline@meningitisnow.org.

Good this helps. Good Luck x

MNClaireD profile image
MNClaireDPartnerMeningitis Now

Hello, I have sent you a private message re support. Best wishes, Claire

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