Has anyone gotten Pots after meningitis?

[Keep-The-Faith]

I got viral meningitis in 2018 & then constant utis & sepsis. I couldn't figure out why I had maybe 5% energy & couldn't get out of bed. My heart rate would go up & I couldn't walk right & I got down to 90 lbs. plus more. Last May I was finally diagnosed with Pots syndrome which I told them I thought that's what I had. My heart rate was almost 200 just sitting on the bed & it turned into Afib. I got it from a viral infection..meningitis. Now looking back all the puzzle pieces are fitting together. It attacked my bladder first & when I got sick last year with covid it really ramped up my pots. Pots Syndrome is so debilitating. Has anyone got it from VM & what has helped you? I've been mostly bedridden all this time, the exhaustion is unbearable.

Thx in advance.

[MadBolly]

Hi, I had viral meningitis in July 2018 and never fully recovered. I ended up being diagnosed as having ME. POTS and ME seem to be a common after affect from viral meningitis. I hope you get the strength back and feel a bit better soon. X

[Pinkladytracy]

Hi, I had viral meningitis jan 2015 and been left with ME / chronic fatigue and orthostatic intolerance which is like POTS, I’m under a syncope clinic who are amazing and I’m on steroids that have helped, but also it’s about drinking a lot of water - 3 litres a day (500ml aa soon as you wake up) more salt and compression underwear. I’m better than I was so hopefully this will help you too - good luck

[Pinkladytracy in reply to Pinkladytracy]

Also it sounds like you have Cfs / ME - diagnosis was important to me and then pacing has helped but is hard, there are fatigue charity’s out there that can help - I use SALUS. Good luck

[kelpie25]

Often POTS goes with Hypermobility Spectrum Disorders, but no one mentions HSD here. Ehlor Danlos Syndrome is an HSD and many people have POTS with it. I've too many medical conditions and had VM and was diagnosed with HMS many years prior to it. Despite being extremely careful I've recently had Covid and headaches recurred and still continue. I'm immunocompromised because I have myasthenia gravis and accepted offer of IV anti viral. Initially covid headache was the worst symptom.