Myoclonic jerks and/or mild ataxia?

[greenocean]

Anyone have uncontrolled muscle jerks? or ataxic movements post viral meningitis ? How long did it last?

[Floodle]

Yes, some nights I have to get up it’s so bad, mostly happens when I am super tired. It’s a whole body spasm .My neurologist has put me on the list for a sleep study. I had bm I. 2014 . I get numb hands at night too so I am constantly turning with that as well .How my husband sleeps I do not know!

I would be interested in what your neurologist says. Best wishes

[Bellesmom12]

I have been left with tremors in my hands and chest. My upper body always feels tight and the muscles are always constricted. I have to constantly remind myself to relax my muscles. I am 9 months post diagnosis. The tremors make me crazy. I look like a drug addict.

[OlamanaMartel]

2 years out sept 7 th and still have.still in recovery from pneumonia leptospirosis ,and meningitis , followed by mononucleosis , and still on my back most of the time with trips into town when I’m up for it ,and for dr, apt. And sometimes a movie. Packed in pillows. Take a reclining chair if I can if I will b sitting upright for any amount of time as it causes pain to sit upright for very long. Also have had fibromyalgia for 64 years not diagnosed till in my 50’s.

[Offs123]

Yes I suffer from these too and have done for several months now. My VM started at the end June 2019. My neurologist was not concerned by this and was quite dismissive. They have become my barometer, an indicator that I have done too much or not got to bed early enough before they start. When they are particularly bad they stop me from going to sleep and wake me up. Like others I have had to get up in the night to stop them. I would also be interested to know how long others have had this and if they found anything useful to stop it from occurring. When I'm particularly bad my daughter can't watch, she has to leave the room! I think it frightens her. I did wonder if it was epilepsy at one point but the neurologist doesn't think so and nothing showed on my mri scan.

[Rowi]

Different body parts would jerk when I was lying down, sometimes in a scary or dramatic way. Neck, arms, trunk, legs--never together. It took about a year to calm down. I still have them a bit, but it's almost imperceptible.

[irene123]

A few suggestions. Increase your intake of green foods like lettuce,spinach,broccoli because they have heaps of magnesium in them. That relaxes muscles, and the mind. If you take a supplement make sure it is one with a variety of types of magnesium in it .

Try to cut back on coffee/tea, alcohol, as they are foods that pull moisture out of your system which also pulls out magnesium, as do pharmaceuticals like Ferosomide/Frusamide which are used for fluid retention.

[irene123]

Also, I forgot to mention that sweating also depletes your body of magnesium. So try to remain cool. And paracetamol seems to help sweating due to hormonal or fever causes.

[irene123]

Also, yes. I had VM 3 years ago and find out that I need to keep up my green foods, and mag supplements still. I'm also a lab tech, and ex teacher so am the ever more experimenter on my own body. I still have dizziness, and weakness, and short term memory problems,but only when I've had little sleep. And not eaten well enough.

[Hidden]

Yes. They got so bad once that I had a sleep study done. Doctor found nothing. They wax and wan.