Headaches 6 months post VM

[RemainingHopeful]

I'm currently having daily headaches 6 months post 2 hospitalizations with asceptic VM of unknown origin. They actually seem to be getting worse of late although my stress levels have increased. They are always occipital - a dull ache (base of skull) and temporal (both sides above ears)- sharper pain. Does anyone else have daily headaches 6 months later and what helps?

[jenny2448]

hi remaininghopeful I hope you are feeling better than when you first came home.

i am 2 years post v encephalitis/ meningitis. i still have really bad headaches if I am in a sunny position or I look outside the window into a sunny aspect. I wear a good pair of sunglasses that are 3 rated. This helps my headaches. I hope this helps.

[MooreJH]

Hello

I am 20 months post meningitis and still suffered with severe headaches and migraines where my original pain and swelling was in my brain. This would still be the case now if I didn’t follow a very specific diet (this was proven over Christmas when I ate normally for a couple of days and then a had bad relapse). Certain food contain inflammatory properties and, therefore, inflame pain and swelling in our body. I follow a very anti-inflammatory food diet and lifestyle now and that’s the only thing that gets me through daily life without pain relief. I also take zinc and magnesium for recovery and a vitamin B complex. I eat certain foods at certain times of the day when I know my pain could potentially heighten and this also helps as well. I can, at times, get away with eating normal food but I have to ensure I’ve ate well prior to that. Also drinking a lot of water and turmeric tea helps. I have one tea in the morning and one in the afternoon. If I go for days out I make sure I have certain foods on me to help me through the day.

If you need any more help or support feel free to drop me a message. It is possible to reduce headaches but I know how debilitating and hard this recovery is.

Take care

Heather

[Emerald8888]

My Dr prescribed Amitriptyline. I'm finding at least 30mg at night helps. My pains are in exact place yours are.

[RemainingHopeful in reply to Emerald8888]

So good to know I'm not alone!

[Buckie3]

Hi RemainingHopeful, I will be post 4yrs aseptic encephalomenigitis this March 9th. I continue to have sharp head pain as I have scar tissue from brain swelling. It gets worst when I am tired, as overdoing work, or stressed. Its intermittent and there is not much I can do but if it lingers I take Indocin. Talk with your doctor about it and what they can prescribe for you. It's a journey but you will learn what your limitations are and continue to live life.

[Sunny308]

Anyone get chest pains and a numbness go over their head? And I feel like a headache coming 7 months post vm

[Amrita-A]

Hi.

7 months post VM for me and also daily headaches. I started a job in November and my headaches are much worse and constant from the stress and shortage of rest and sleep.

Hopefully it will get better for us.

[RemainingHopeful]

I had a neuro appt last Thursday I'd been waiting on for 5 months. He put me on a new once monthly injection called Aimovig. It can take 3-6 weeks to begin to work. So far I do think my headaches are less in severity, but still daily; it's really too early to tell. I've also been changing my diet to no dairy & low (if any) gluten so that may be helping too. Hang in there!! Congrats on the new job