Trying to move on after VM: I’m having a hard... - Meningitis Now

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Trying to move on after VM

AHamilton11092016 profile image
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I’m having a hard time with all the side effects from VM. I pretty much have single one mentioned on the VM article here. The worse is the headache pains, it varies from tension to migraine. I’m taking Cymbalta daily to help with pain along with Klolazpam. I have pain spasms that look like seizures when the pain is too bad. I lose my speech where I slur which is considered Atypical migraine. I do restorative yoga, I find ways to distract me from the pain. I have secondary depression from this since I was diagnosed in November 2016. Three days after the neck pain and my eyes stopped looking red the headaches came full force and never left. I do Botox I also get dry needling in my jaw since I have TMD now as well. I’m about to be 33 in June and I watch people who suffer through cluster headaches which describe me but it’s all the time instead of having episodes. I am in the military but for a year now my hours have been adjusted to 4 hour days. I can’t concentrate too long on work because I start to get bad anxiety because I know the information but my brain just can’t produce it out of my mouth it’s like I have fog that I have to fight through. I deal with losing my memory as well on somethings and sometimes I can’t remember what things are called. The right side of my body doesn’t work as well as my left. I lose balance or get vertigo. And when I work through the pain I last only to 12 pm after that my brain and body truly exhausted where I have to sleep I wake up 5 hours later and then can go right back to bed with my husband at 8 pm.

So the million dollar question is how do you deal with all this knowing life will be completely different from now? Any copping advice or anything will help me greatly.

Amie VM survivor and wounded warrior

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AHamilton11092016
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Hexy profile image
Hexy

Try and find a CRANIAL OSTEOPATH it's not a cure. Though it does help with the pain, it's not migraine it's meningitis attacks anti depression tablets (I'm on mirtazapine and diazepam) had this horrid illness 30+years ago and still suffer. As your memory mixed things up, making you feel vulnerable and depressed, speak to your Doctor. Mind health umbrella you come under. As your brain has been rewired not restored! Fight this the best way for yourself. You are not alone.

Anita xx

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