Viral Meningitis from HSV: Hi, I’m in the... - Meningitis Now

Meningitis Now

6,757 members2,104 posts

Viral Meningitis from HSV

Jimmy1117 profile image
4 Replies

Hi, I’m in the first week of recovery from viral meningitis. This entire experience has been a rollercoaster of emotions, and finding this forum has made a world of difference for me. What I thought was a normal migraine one day had me in the ER getting a spinal tap 2 days later. (Which I had to ask for, I was going to be sent home with ‘migraines’). Anyway, during my recovery I have noticed a shooting almost painful tingling mumbling sensation in my arms and legs if I waited too long between doses of valtrex. Has anyone also experienced this? It alarmed me so much I went back to the ER. They had no answer for me. Thanks!

Written by
Jimmy1117 profile image
Jimmy1117
To view profiles and participate in discussions please or .
Read more about...
4 Replies
Amw41 profile image
Amw41

Hi. When my menengitis hit it was exactly the same. And then I was told I had HSV2. I was in complete shock. Now I’m noticing the 2 times I have relapsed I think it’s form the hsv flaring. So I finally am diagnosing myself as the doctors are useless. So sometimes you are the best one to know what to look for. Your body will tell you. I’m 3.5 months now with 2 relapses. So I am in the same boat. Chin up is what everyone keeps telling me. So I say the same

bchgirl profile image
bchgirl

Hi Jimmy, I completely understand wjat you are going through. I was hospitalized with viral spinal meningitis back in August. Fortunately I was treated straight away for it. ( except I waited at home with fever for 7 days before my ER visit). When I got home the pain in my arms and legs was horrible and I was on strong pain killers! The pain in my arms eventually eased after about a month. The pain in my legs however continued for about another month. My doctor told it was all part of healing from the meningitis. NOT FUN!! Hang in there and you need lots of water and REST,or. you WILL have a relapse. I am finally feeling like I am getting back to normal. It might be hard for your family and friends to understand what youare going through tho😐 . You might need to explain it to them. I know this must be a hard time ( around the holidays) to be going though all of this. I hope this helps a little bit . You are not alone. ....... Julie

MarkJohn-SD profile image
MarkJohn-SD

I am seven months post, also have small fiber polyneuropathy, which is the leg and arm pain. I had those symptoms long before VM but diagnosed after. VM does exacerbate it.

If we t continues to be an issue suggesting you see neurologist.

Ace_survivor profile image
Ace_survivor

I have the same thing down my right arm. Tingling and so painful. Like the circulation isn’t working properly it seems. I had Meningoencephalitis in August this year 2017. Everyday headache, which I’ve never had before this illness. It really takes over your life. I’m still not in work and also play rugby and can’t do that ether. On a downward spiral, very depressing times. Hope you find the answer soon as I would like some info on that xx

You may also like...

HSV-1 Viral Meningitis

I'm new to Meningitis Now and would like to firstly thank you all for being part of this forum, it...

Migraines from viral meningitis

Dear all, I had viral meningitis in October 2012 and its nearly 3 years after now! I have chronic...

Recovering from viral meningitis

I was diagnosed with viral meningitis in August. I was not given any information on the illness just

Slow recovery from Viral Meningitis

just joined this forum and wanted to know if people have experienced similar recoveries. I am still...

recovering from viral meningitis april 2012

was lucky and upon being in hospital an hour i had , had chest x ray ct scan and lumbar puncture ,...